Every time I've tried to go off I go out of remission so I'm cutting down some and see what happens. Blood is good. Gonna check bcr if it's online yet. Moffitt has a patient portal online. All your records are there. Blessing
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 2, 2017, at 11:50 PM, Richard H <rbhuffm...@gmail.com> wrote: > > Yes, but not successfulf. I am currently with no BCR-ABL found. But usually > I am just about .ooo4%. Good luck,I have been going for 17 1/2 years. > > Richard H. > >> On Saturday, September 2, 2017 at 4:07:22 PM UTC-5, nycotb176 wrote: >> Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with sclerosis >> of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to >> 200. After a year, I was still in remission.No Philadelphia Bug found in the >> last 15 yrs. Six months ago I was told I may be a candidate for a clinical >> trial for individuals like me. I had to go thru a list of questions and when >> I was done I was told the trial had closed. I decided to take my self of the >> Gleevec and spoke to my oncologist and he told me that he felt I may be >> CURED (Which I don't like that word) Well its been 3 months so far and no >> changes. Looking forward to the future. I was also told I would have to be >> off Gleevec for two years before they would be able to tell me the good >> news. Has anyone else tried to go off Gleevec???? > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
