So happy for you. Hope I can get the same results. You are such an inspiration to me so keep up the good work. Love you so very much
My Motto: Faith and Pills With Love 🐠18's Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/2015 Doctor Balducci Moffitt Cancer Center > On Sep 3, 2017, at 11:38 AM, 'Susan Rosenthal' via CMLHope > <[email protected]> wrote: > > Tony: > > This Oct. 2, 2017, I will have been off Gleevec for two years. > > So far, I've remained undetectable-had on blip February 2015, but Dr. Druker > assured me that happens about 4 months out and that the next month would show > undetectable again. Been undetectable since just like he said😀 > > Had my last PCR test in June at his office. I live in Miami and will be > getting another PCR test this month! Keeping fingers crossed! > > Hugs, > Susan Rosenthal > >> On Sep 2, 2017, at 11:45 PM, Tony Lanoue <[email protected]> wrote: >> >> I just read last week on one of the Facebook groups that somebody has been >> off Gleevec for two years now and their counter remain stable. I am your >> other hand tried going off last year and my counts started coming back up. >> So this year I switched to Sprycel, going to stay on the Sprycel for one >> year then try to discontinue use. The studies show that people are having >> more success staying in remission after being on Sprycel. But like I said >> before some people are having success after being treated with Gleevec also! >> >> Sent from my iPhone >> >> On Sep 2, 2017, at 8:30 PM, Marty Gartenberg <[email protected]> wrote: >> >>> Do you see just what the meaning of 18's is... >>> >>> Well all that counts is that your finally off of Gleevec. GOOD FOR >>> YOU<image.png> >>> >>> 18's, >>> >>> Marty >>> >>>> On Sat, Sep 2, 2017 at 3:58 PM, nycotb176 <[email protected]> wrote: >>>> Going on 16 yrs on 400 gm of Gleevec, when I was diagnosed with sclerosis >>>> of the Liver. My Oncologist at Moffitt Cancer Center lowered my dosage to >>>> 200. After a year, I was still in remission.No Philadelphia Bug found in >>>> the last 15 yrs. Six months ago I was told I may be a candidate for a >>>> clinical trial for individuals like me. I had to go thru a list of >>>> questions and when I was done I was told the trial had closed. I decided >>>> to take my self of the Gleevec and spoke to my oncologist and he told me >>>> that he felt I may be CURED (Which I don't like that word) Well its been 3 >>>> months so far and no changes. Looking forward to the future. I was also >>>> told I would have to be off Gleevec for two years before they would be >>>> able to tell me the good news. Has anyone else tried to go off Gleevec???? >>>> -- >>>> -- >>>> [CMLHope] >>>> A support group of http://cmlhope.com >>>> ------------------------------------------------- >>>> >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To post to this group, send email to [email protected] >>>> To unsubscribe from this group, send email to >>>> [email protected] >>>> For more options, visit this group at >>>> http://groups.google.com/group/CMLHope >>>> --- >>>> You received this message because you are subscribed to the Google Groups >>>> "CMLHope" group. >>>> To unsubscribe from this group and stop receiving emails from it, send an >>>> email to [email protected]. >>>> For more options, visit https://groups.google.com/d/optout. >>> >>> -- >>> -- >>> [CMLHope] >>> A support group of http://cmlhope.com >>> ------------------------------------------------- >>> >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To post to this group, send email to [email protected] >>> To unsubscribe from this group, send email to >>> [email protected] >>> For more options, visit this group at http://groups.google.com/group/CMLHope >>> --- >>> You received this message because you are subscribed to the Google Groups >>> "CMLHope" group. >>> To unsubscribe from this group and stop receiving emails from it, send an >>> email to [email protected]. >>> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
