Hi all I had this problem when on Tasigna. My hmg dropped to 8. I argued with my onc as I didn’t want someone else’s blood in me. I knew if he would take me off the tasigna the hbg would come back up. He finally talked me into it and I had to stay for hours getting transfusions. As most of you know not fun. Tasigna about killed me and I landed back in the hospital until I could talk my doctor into giving me Sprycel. I decided to make the move to Moffitt and never regretted it. Good luck to everyone. Take it Day by day and as my granddaughter says, “every little thing’s gonna be alright.” ❤️
My Motto: Faith and Pills With Love Jeanie 🐠free Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired 0 CBL. ABL > On Jul 9, 2018, at 10:21 AM, Marty Gartenberg <[email protected]> wrote: > > Richard, first thing is when your hemoglobin drops to 10 or below then is the > time that procrit generic Epoetin Alfa should start. It should increase your > red/hemoglobin count. However it may take a week or two to start showing > results. Why don't you mention this to your doctor. > Also, have your kidney function checked as well. > > When my kidneys started to fail I was on Dialsys and found that my hemoglobin > level started dropping. Kidney function has a lot to do with that. The reason > why is because there is a hormone called Erythropoietin which is released > in response to hypoxia (low levels of oxygen at tissue level) in the renal > circulation. It stimulates erythropoiesis (production of red blood cells) in > the bone marrow. I am writing this in bold font to make sure that it can be > understood, it is that important! > > When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I felt > like I coulden't even get out of bed. My wife would help me into her car and > help me into the Dialysis center. I lived a horrible life until I had a > kidney Transplant. > > I have heard a lot of people mentioning that they blame some of the TKI that > they are taking. Perhaps that may be so, but what if it isn't that at all? > That is why they need to consult with their doctors because that is his or > her job. And if they feel that there is someone that can help as well then > get a second opinion. Don't forget they won't be hurt or offended because > they are all getting together to help you. > > Richard and everyone else, there was a time a very long time ago that my > father tought me something. He said that everyone needs to learn something > new everyday because it will make you smarter. If you refuse to learn > something new everyday then you will revert back to yesterday. And he was > right! > > 18's > > Marty > >> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <[email protected]> wrote: >> Yes, I have been struggling with this for years. I have had Transfusions, >> and now check my CBC every month to see if I need to take Procreate to bring >> my blood level back up. I am currently on 200 mg Gleevec daily because my >> CML levels will rise if I don't use it as a maintenance feature. I am >> approaching 16 1/2 years since diagnosis. >> >> Richard H. >> >>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote: >>> I suddenly became terribly anemic and my doctor cut my intake of 400mg >>> Gleevec daily in half. It took five months but I am no longer anemic and >>> the CML does not seem to have become visible as yet. Has anyone else had a >>> problem like this? >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to [email protected] To unsubscribe from this group, send email to [email protected] For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to [email protected]. For more options, visit https://groups.google.com/d/optout.
