So true Marty
You aren’t even on tki’s and look what you’ve been through. 
Thank you for this email. 
Love you so very much 
Jeanie

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 

0 CBL. ABL

> On Jul 10, 2018, at 8:53 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
> 
> Oh Jeanie,
> 
> first let me take you back to something I wrote to Richard
> 
> I have heard a lot of people mentioning that they blame some of the TKI that 
> they are taking. Perhaps that may be so, but what if it isn't that at all? 
> That is why they need to consult with their doctors because that is his or 
> her job. 👉And if they feel that there is someone that can help as well then 
> get a second opinion.👈 Don't forget they won't be hurt or offended because 
> they are all getting together to help you. 
> 
> 
> And we will now continue on. Please read this. I took the time to write it 
> for a reason and I see that you took my 👉advice👈. A lot more... But I want to 
> hug your grand-daughter. My father once taught me a lesson and I think that 
> you may want to pass this onto her, and yourself as well.
> 
> When a person/s learns something new everyday then they become smarter. When 
> a person/s refuses to learn something every day then they revert back to 
> yesterday.
> 
> Hum, let me think..... Oh yea I think that your grand-daughter already knows 
> this?
> 
> 
> "Take it Day by day and as my granddaughter says". She said “every little 
> thing’s gonna be alright.”
> ❤️
> Blood transfusions: A sort of long story but learning something new every day 
> made me smarter and I am still alive... Jeanie I don't blame you for not 
> wanting other peoples blood in you but let me ask you a question? How many 
> units of blood did you require? Did it help you? Well i needn't know the 
> answer because I already know but nothing that you told me but I know and 
> here is why.
> 
> I had O+ blood and my sister had B+ blood. So my transplant doctor told me 
> that since my white blood count was past 186,000 that I need to have the bone 
> marrow transplant now. Or I may not survive because I was in Blast crises 
> that I was in.
> 
> But he knew about my blood type wasn't a match for my sister but everything 
> was perfect but the matching type. He told me that there may be a way to 
> change my blood type but it could also cause my death. I then told him that i 
> was dieing anyway so let's try it. 
> 
> He started it before my transplant. It would require that I would have to get 
> many, many blood transfusions as well a a lot of platelets  infusions, and 
> Gama globulin and other human blood products. 
> 
> Who already knew about this? R***** Z********. Who showed up with 41 
> "members" of his "family"
> (Yes you know what I mean about this) ready to donate blood. But there was a 
> problem. At that time there was a new disease called AIDS and all of the 
> blood banks started testing and this slowed down the collection of gathering 
> of blood.
> 
> Not to keep you on the edge of your seat. I once helped save a woman's life 
> because she was dying of stage four breast cancer and I did this because I 
> knew a doctor who may help her, and it took more then two years. He never 
> forgot me. 
> 
> Some people just have their power but most don't. He was one of those that 
> did to a certain extent. The way that I look about it was one life foe 
> another. 
> 
> In order to have my blood type converted from O to B I needed 96 units of 
> blood and I already knew where 41 of them came from. Just to let you know if 
> a donated unit of blood did not match my blood profile it would be switched 
> and someone else would get that unit of blood and a "trade" was made. I am 
> now called a Chimera with B+ blood in me.
> 
> Now I am going forward in my life once more: Twenty years later my kidneys 
> started started to fail. I was on Dialysis for four years and through a 
> miracle I was able to get a kidney transplant and while I was outside of the 
> operating room I noticed a white cooler with a red cross and it said "Human 
> organs, B right side short urethra. 
> 
> I almost jumped out of the gurney because it was B type and then I remembered 
> that I used to be O type. Now what are the chances that this could ever 
> happen?
> 
> Now Jeanie and all of the rest of you reading this, don't you think that 
> there truly Miracles floating around? Just ask your grand daughter....Now you 
> already know what I know. Have you learned anything new today? I have.
> 
> 
> 18's
> 
> Marty
> 
> 
> 
> 
> 
> 
> 
> 
>> On Tue, Jul 10, 2018 at 6:01 AM, 'Jeanie' via CMLHope 
>> <cmlhope@googlegroups.com> wrote:
>> Hi all
>> I had this problem when on Tasigna. My hmg dropped to 8. I argued with my 
>> onc as I didn’t want someone else’s blood in me. I knew if he would take me 
>> off the tasigna the hbg would come back up. He finally talked me into it and 
>> I had to stay for hours getting transfusions. As most of you know not fun. 
>> Tasigna about killed me and I landed back in the hospital until I could talk 
>> my doctor into giving me Sprycel. I decided to make the move to Moffitt and 
>> never regretted it. 
>> Good luck to everyone.  Take it Day by day and as my granddaughter says, 
>> “every little thing’s gonna be alright.”
>> ❤️ 
>> 
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> 
>> 0 CBL. ABL
>> 
>>> On Jul 9, 2018, at 10:21 AM, Marty Gartenberg <wa2...@gmail.com> wrote:
>>> 
>>> Richard, first thing is when your hemoglobin drops to 10 or below then is 
>>> the time that procrit generic Epoetin Alfa should start. It should increase 
>>> your red/hemoglobin count. However it may take a week or two to start 
>>> showing results. Why don't you mention this to your doctor. 
>>> Also, have your kidney function checked as well. 
>>> 
>>> When my kidneys started to fail I was on Dialsys and found that my 
>>> hemoglobin level started dropping. Kidney function has a lot to do with 
>>> that. The reason why is because there is a hormone called Erythropoietin  
>>> which  is released in response to hypoxia (low levels of oxygen at tissue 
>>> level) in the renal circulation. It stimulates erythropoiesis (production 
>>> of red blood cells) in the bone marrow.   I am writing this in bold font to 
>>> make sure that it can be understood, it is that important!
>>> 
>>> When I was on Diaysis sometimes my HGB would drop to from 7% to 9% and I 
>>> felt like I coulden't even get out of bed. My wife would help me into her 
>>> car and help me into the Dialysis center. I lived a horrible life until I 
>>> had a kidney Transplant.
>>> 
>>> I have heard a lot of people mentioning that they blame some of the TKI 
>>> that they are taking. Perhaps that may be so, but what if it isn't that at 
>>> all? That is why they need to consult with their doctors because that is 
>>> his or her job. And if they feel that there is someone that can help as 
>>> well then get a second opinion. Don't forget they won't be hurt or offended 
>>> because they are all getting together to help you.
>>> 
>>> Richard and everyone else, there was a time a very long time ago that my 
>>> father tought me something. He said that everyone needs to learn something 
>>> new everyday because it will make you smarter. If you refuse to learn 
>>> something new everyday then you will revert back to yesterday. And he was 
>>> right!
>>> 
>>> 18's
>>> 
>>> Marty
>>> 
>>>> On Sun, Jul 8, 2018 at 11:31 PM, Richard H <rbhuffm...@gmail.com> wrote:
>>>> Yes, I have been struggling with this for years.  I have had Transfusions, 
>>>> and now check my CBC every month to see if I need to take Procreate to 
>>>> bring my blood level back up.  I am currently on 200 mg Gleevec daily 
>>>> because my CML levels will rise if I don't use it as a maintenance 
>>>> feature.  I am approaching 16 1/2 years since diagnosis.
>>>> 
>>>> Richard H. 
>>>> 
>>>>> On Saturday, July 7, 2018 at 1:04:15 PM UTC-5, Vivi wrote:
>>>>> I suddenly became terribly anemic and my doctor cut my intake of 400mg 
>>>>> Gleevec daily in half.  It took five months but I am no longer anemic and 
>>>>> the CML does not seem to have become visible as yet.  Has anyone else had 
>>>>> a problem like this?
>>>> 
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