Hi Beth I know how this is. All these test and no answers. I too was in the hospital last May with every test you could think of. No answers to my side pain at all and Moffitt won’t agree that it’s cancer related so they won’t treat it. My dr had to retire and they turned me over to Martrine Extraman. I don’t even see her as she turned me over to a nurse. I don’t feel protected with no dr to see. Well I only have to go every three months so as long as the blood is good I’m kk. The senior oncology program has been moved to a new Moffitt cancer building and it looks more like an expensive hotel than a cancer center. It seems they are trying to use less employees and more machines to take care of you. I will get my bcr abl test back soon. Let you know how many cancers cells are lurking around ready to pounce. Hehe Prayers for all
My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 20, 2018, at 4:13 AM, Marty Gartenberg <[email protected]> wrote: > > >> On Wed, Sep 19, 2018, 10:12 PM rszim0702 via CMLHope >> <[email protected]> wrote: >> Hooray Jeanie! I also learned this week that I have reached MMR again! Been >> about 4 yrs. since this has happened. Sooo happy! >> >> Dear Beth, >> >> Will intensify my prayers for you to get through this very serious state of >> affairs. Your positive attitude always does my heart good when I read your >> posts. I know those visits to hospital without any answers make it tough. >> Hopefully the cure is right around the corner. >> >> To all the rest of my blood brothers and sisters: may you have the greatest >> fall ever and enjoy the colors and weather. >> Love Beth's admonition...happy fall y'all! >> >> 18's, >> Susan z. >> >> >> On Sep 18, 2018 2:06 PM, bkbarney via CMLHope <[email protected]> >> wrote: >> So happy to hear this wonderful news. Thanks for sharing Jeanie. >> >> Happy and Healthy New Year to all who observe the Jewish Holidays. >> >> My update is that I continue to struggle, staying positive and trying to >> figure out what is going on with me. In the hospital for a few days a couple >> of weeks ago. Lots of tests..no answers...BCR last time was very different >> than it ever was before since on sprycel. 10x more bcrl abl cells but still >> a reasonably low ratio. So, I am praying that it will continue to work for >> me. The next blood test should tell us more. Will keep you all informed. >> Pray that it returns to my normal so I can focus on other related health >> issues. Happy fall to all... >> >> >> Much love, >> >> Beth >> >> >> -----Original Message----- >> From: 'Jeanie' via CMLHope <[email protected]> >> To: cmlhope <[email protected]> >> Sent: Tue, Sep 18, 2018 12:36 pm >> Subject: [CMLHope] Blood work Moffitt perfect >> >> >> Hi all >> My blood work at Moffitt today came back perfect! >> Praise the Lord!! >> God is so good to me. >> Love you so very much >> ❤️😄❤️🌺😀 >> My Motto: >> Faith and Pills >> With Love >> Jeanie >> 🐠free >> 18’s to Marty >> Dx 1/2004 CML Leukemia >> Started Gleevec 2/2004 >> Started Tasigna 9/2009 >> Started Sprycel 11/2009 >> Started Ponatinib 1/ 2015 15 mg >> New Doctor--Dr Martine Extermann >> Moffitt Cancer center sept 2017 >> Dr Balducci retired >> Dr Gedia PCD >> 0 CBL. ABL >> Taking 0.05mg 50 mcg levothyroxine >> July 2018 dx with thyroid disease tsh 13 >> T4-normal t3-normal >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. >> >> -- >> -- >> [CMLHope] >> A support group of http://cmlhope.com >> ------------------------------------------------- >> >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To post to this group, send email to [email protected] >> To unsubscribe from this group, send email to >> [email protected] >> For more options, visit this group at http://groups.google.com/group/CMLHope >> --- >> You received this message because you are subscribed to the Google Groups >> "CMLHope" group. >> To unsubscribe from this group and stop receiving emails from it, send an >> email to [email protected]. >> For more options, visit https://groups.google.com/d/optout. > > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to [email protected] > To unsubscribe from this group, send email to > [email protected] > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to [email protected]. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. 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