Hi Beth Just wanted to let you know that Sprycel quit working for me after 4 years. Dr found out I had a mutation. Have them check to see if you do. This is when they put me on Ponatinib. I am doing good on it. Been on it now for almost 4 years. It’s a very dangerous drug if you have heart problems do you will have to see Prayers Jeanie❤️
My Motto: Faith and Pills With Love Jeanie 🐠free 18’s to Marty Dx 1/2004 CML Leukemia Started Gleevec 2/2004 Started Tasigna 9/2009 Started Sprycel 11/2009 Started Ponatinib 1/ 2015 15 mg New Doctor--Dr Martine Extermann Moffitt Cancer center sept 2017 Dr Balducci retired Dr Gedia PCD 0 CBL. ABL Taking 0.05mg 50 mcg levothyroxine July 2018 dx with thyroid disease tsh 13 T4-normal t3-normal > On Sep 18, 2018, at 2:06 PM, bkbarney via CMLHope <cmlhope@googlegroups.com> > wrote: > > So happy to hear this wonderful news. Thanks for sharing Jeanie. > > Happy and Healthy New Year to all who observe the Jewish Holidays. > > My update is that I continue to struggle, staying positive and trying to > figure out what is going on with me. In the hospital for a few days a couple > of weeks ago. Lots of tests..no answers...BCR last time was very different > than it ever was before since on sprycel. 10x more bcrl abl cells but still > a reasonably low ratio. So, I am praying that it will continue to work for > me. The next blood test should tell us more. Will keep you all informed. > Pray that it returns to my normal so I can focus on other related health > issues. Happy fall to all... > > > Much love, > > Beth > > > -----Original Message----- > From: 'Jeanie' via CMLHope <cmlhope@googlegroups.com> > To: cmlhope <cmlhope@googlegroups.com> > Sent: Tue, Sep 18, 2018 12:36 pm > Subject: [CMLHope] Blood work Moffitt perfect > > > Hi all > My blood work at Moffitt today came back perfect! > Praise the Lord!! > God is so good to me. > Love you so very much > ❤️😄❤️🌺😀 > My Motto: > Faith and Pills > With Love > Jeanie > 🐠free > 18’s to Marty > Dx 1/2004 CML Leukemia > Started Gleevec 2/2004 > Started Tasigna 9/2009 > Started Sprycel 11/2009 > Started Ponatinib 1/ 2015 15 mg > New Doctor--Dr Martine Extermann > Moffitt Cancer center sept 2017 > Dr Balducci retired > Dr Gedia PCD > 0 CBL. ABL > Taking 0.05mg 50 mcg levothyroxine > July 2018 dx with thyroid disease tsh 13 > T4-normal t3-normal > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. > -- > -- > [CMLHope] > A support group of http://cmlhope.com > ------------------------------------------------- > > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To post to this group, send email to CMLHope@googlegroups.com > To unsubscribe from this group, send email to > cmlhope-unsubscr...@googlegroups.com > For more options, visit this group at http://groups.google.com/group/CMLHope > --- > You received this message because you are subscribed to the Google Groups > "CMLHope" group. > To unsubscribe from this group and stop receiving emails from it, send an > email to cmlhope+unsubscr...@googlegroups.com. > For more options, visit https://groups.google.com/d/optout. -- -- [CMLHope] A support group of http://cmlhope.com ------------------------------------------------- You received this message because you are subscribed to the Google Groups "CMLHope" group. To post to this group, send email to CMLHope@googlegroups.com To unsubscribe from this group, send email to cmlhope-unsubscr...@googlegroups.com For more options, visit this group at http://groups.google.com/group/CMLHope --- You received this message because you are subscribed to the Google Groups "CMLHope" group. To unsubscribe from this group and stop receiving emails from it, send an email to cmlhope+unsubscr...@googlegroups.com. For more options, visit https://groups.google.com/d/optout.
