Hi Maithilee,
Just to reiterate that DDI is likely to be helpful; I believe it is
being used in longitudinal clinical studies as well social science.
Another approach that may be relevant is the work on metadata modelling
based around the CONSORT best practice guidelines for trial reporting,
developed in CancerGrid. A reference is: Davies, J., Gibbons, J.,
Harris, S., & Crichton, C. The CancerGrid Experience: Metadata-Based
Model-Driven
Engineering for Clinical Trials. pre-print available at:
http://www.cs.ox.ac.uk/people/charles.crichton/
Best wishes,
Angus
--
Dr Angus Whyte
Senior Institutional Support Officer
Digital Curation Centre
University of Edinburgh
Crichton St, Edinburgh EH8 9LE
+44-131-650-9986
On 31/10/2012 21:26, "Tuomas J. Alaterä" wrote:
Maithilee,
one resource to look into could be the seminar papers on Best
Practices for Longitudinal Data by DDI Alliance.
http://www.ddialliance.org/resources/publications/working/BestPractices/LongitudinalData
These are not metadata tutorials, some are rather technical DDI
metadata (Data Documentation Initiative) related documents, but the
scope is in managing longitudinal data. And they do at least in part
touch the issue of clinical data, and could offer some useful contact
details too.
(Data and documentation of the MIDUS (National Survey of Midlife
Development in the United States) mentioned in the seminar papers can
be found at: http://midus.colectica.org/)
Best,
-Tuomas
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