No, Michelle, it's absolutely not terrible. You're doing the most loving
thing anyone could do. 
Please know you and Simon are in my thoughts constantly. And I will pray
he passes peacefully, in your arms. much love to you all, Kerry
-----Original Message-----
From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] On
Behalf Of [EMAIL PROTECTED]
Sent: Tuesday, January 11, 2005 3:48 PM
To: [email protected]
Subject: Re: Simon update--Kathy


Kathy,

    You are truly an amazing person, and your messages are so helpful. I
am 
crying as I write, which I really have not done much-- I've more been
racked 
with stress, unable to eat or sleep, and truly frightened (even though I
have 
been through SO many deaths before, this process with him is dragging on
much 
longer than any I have ever experienced).  

    I stopped the reglan and pepcid yesterday, an truthfully he does not
seem 
that nauseous.  He has a lot of steroids in him-- he got a shot of dex
and 
depo on Friday and then I gave him additional shots of dex on Sat and
Sun-- 
that's a lot of steroids and I am assuming that is why he does not seem
that 
nauseous. Even on the steroids and the reglan and the pepci and 200 cc's
of fluid a 
day, he stopped eating.  I continued the reglan and pepcid for a day
after I 
stopped syringing him, but it was upsetting him so I stopped. The same
with 
the fluids.  He is not licking his lips or trying to hang over the water
bowl or 
sitting in sick cat position like my other two who died of lymphoma did,
so I 
think that maybe the steroids are keeping his nausea at bay.  Then
again, 
when he was diagnosed his billirubin was a staggering 25+, about 50
times normal, 
and he was still eating some then, so maybe he has some tolerance for
that.  
Maybe his nausea will return or get worse, and if he licks his lips or
looks 
uncomfortable in that way I will give him reglan and pepcid again. Right
now I 
am trying not to upset him, and all he wants is cuddles and sleep and 
occasionally some help getting to the litter box.

He has actually stopped the trying to walk and then crying thing.  He
has not 
done it since I posted last.  Now when he wants to go to the litter box
he 
walks a few steps and then I lift him into it and hold him up while he
pees and 
then I put him back where he has chosen to sleep and he takes a nap for
a 
while.  No crying, no hyperventillating.  I started putting rescue
remedy in his 
ears every hour. I don't know if it is that which has made him calmer,
or just 
progressive weakness taking away the urge to walk around.  Now he sleeps
at 
least half the time, wakes up and wants pets and purrs, and goes back to
sleep.  
He has not drunk anything since this morning.  He was drinking every
time I 
offered him the water bowl, and now he wants none.  Maybe the steroids
are 
wearing off. Maybe he is close to death. I don't know.

I have wrestled very much with the reglan and fluids issue.  The reason
I 
stopped initially, yesterday, is that each time I gave him a pill or
tried to 
give him fluids he tried to get away from me and that resulted in the
meowing and 
hyperventillating thing, so I decided to just give him all the cuddles
he 
wants and not stress him out any more than I have to. I have reglan,
torbutrol, 
and a tranquilizer on hand if he seems in distress from nausea, pain, or

inability to breathe.  I am hoping against hope he just keeps sleeping
more until he 
slips away peacefully.  

If you pray, please pray for the same.

Thank you for your support-- you have no idea what it means to me.  I
have 
stopped communicating with the oncologist-- we had been emailing about
Simon 
daily-- because I am afraid he will think it awful that I have not just 
euthanized him. He told me on Friday when he sent him home recommending
no chemo for 
the reasons I said before, he gave him steroid shots and said if he were
his cat 
he would give him until Monday to show signs of improvement and if none
he 
would euthanize him before he got worse.  he said he understands people
have 
different views on this, but still, I feel a lot of societal pressure to

euthanize him now that he has entered the dying phase, and it generally
makes me feel 
like I am doing something bad to him by cuddling him instead.  My
partner is 
against euthanasia entirely, so he supports my not wanting to do it now,
but I 
do not trust his assessments because there are definitely times when I
will do 
it and I know he won't do it then either.

Simon is sleeping now. Perhaps he will wake soon and want to be pet. He
rolls 
onto his back less for belly rubs now, wanting instead to be pet on his
back 
and for me to have both my arms around him and kiss him.  It makes him
purr 
like crazy for a while, and then he either drifts back to sleep or
starts to go 
to the litter box and I help him.  This is not terrible, is it?  I can
not 
bring myself to euthanize a purring or sleeping cat.  it would be
easier, in a 
way, because I am going through hell and feel like my body can not
tolerate this 
level of stress and fear at his every move for much longer. But I do not
feel 
that is a reason to take his last hours of cuddling away.  The whole 2
1/2 
years I have had him he has been a total cuddlebug and has not gottent
to cuddle 
so much because I have so many other animals as well.  He has my full 
attention now (much to my other animals' dismay) as well as my
partner's.  he wants 
both of us with him and sits up to watch when either of us leaves until
we 
return.  We have taken to only leaving him or spelling each other when
he is 
asleep and will no notice.  I have never known a cat to be like this
while so 
sick-- normally they want nothing to do with touch, and he in fact was
like that 
for hours at a time while I was still syringing him and giving him
fluids. But 
now he only wants us to be with him all the time. I am bracing for that
to 
change but hope it does not.

Thank you, again, and please pray for him to slip painlessly to death in
his 
sleep,
Michelle


In a message dated 1/11/05 3:57:38 PM, [EMAIL PROTECTED] writes:

<< Michelle,
 
If you can get the pepcid or reglan in him, it will help with nausea.
A 
couple people I've been with who had liver cancer were pretty nauseous.
If 
you 
can get the meds in, and his reaction to food is from nausea, then he
may  
eat 
a little again - probably not much, but a little.  Don't stress him out

worse getting it into him.  If you can get him to take it, that's  fine.

With 
people, as the get in the last week or two, they often lose  their
ability to 
swallow, so it would be safest for Simon if you put the meds  back in
his 
mouth, 
but not so far back that you can't sweep it out with a q-tip  if he
doesn't 
swallow.  From the way you describe his reaction to being  syringe fed,
it's 
more an end-stage thing than a nausea thing though.   Offer him food if
it 
makes 
you feel better, but let him decide to eat if he  wants.
 
As long as his breathing sounds clear, and you can sweet talk him into  
taking fluids subQ, then they can help him be more comfortable - as long
as 
his  
kidneys are still working, they'll keep him urinating and help keep his
liver 
 
and kidney values down and prevent nausea (high levels of creatinine
make you 
 
nauseous too).  When his kidneys start to shut down, more wastes will
stay  
in 
his blood, and fluid will start to back up into his lungs.  When that  
happens, you'll hear wheezes, crackles and bubbles.  If he's fighting
them,  
they 
probably aren't helping a lot anymore, even if they aren't harming  him.
 
Basically, these are his last days.  Help them to be good ones by not
doing 
anything to him that makes him upset.  If he just wants to cuddle and
get 
his 
belly rubbed, then cuddle and rub his belly - and don't worry about the

rest.  I suspect Simon is getting pretty close - meaning in his last
couple  
of 
days.  Hang in there, and try to get a little rest - even if you don't  
sleep.  
You will get through this, and it will get easier. 
 
What you're describing about how you're feeling is anticipatory grief,
it's  
normal, and sounds exactly like what I went through when I lost my Mom
last  
summer.  I found out she was really going to die about 12 hours before
she  
died.  She'd had a stroke 2 weeks before, but I thought I saw things
that  
hinted 
that she might get better.  The morning before she died, they did a
second 
MRI on her and found a second blood clot had gone to her brainstem and
there 
was no hope for her.  I was such a mess my teeth hurt - along with
every 
other 
part of my head - and I had to leave the hospice inpatient  unit where
Mom 
was after an hour and a half because I felt like I  was going to throw
up.  I 
was able to go back and visit her later, and I'm  glad I did, but I wish
I 
could've made myself stay with her like I do for  my patients.  Before I
left 
for 
the night at midnight, I did tell her that  I didn't want to see her go
- I 
wanted her to get better and go home to bug Dad,  but I knew that wasn't

going to 
happen, and we didn't want her  to rush off, but when she was ready to
go, it 
was okay for her to go.   She passed at 5:30 a.m. - with no one from the

family with her.  The  hospice nurse was there, and called us as soon as
she 
saw 
some changes that  normally happen an hour or two before someone passes.

After 
she called us,  she told Mom to hang on because we were on our way, then
Mom 
speeded up and was  gone in about 5 minutes - about 10 minutes before I
got 
there.
 
The good thing about what you're feeling now is that once Simon does
cross  
over, the grief is still there, but it changes.  You may not feel much
like  
eating for a while, but you won't feel sick to your stomach anymore, and
a 
lot  
of the head and neck pain you're probably having will go away.  You'll
feel  
a 
sense of relief that it's over, but still sadness that he's gone.  It
just 
won't be as painful as it is now.
 
Kathy
 >>


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