#380: Collect ALS survey data, EMR data from participating sites
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Reporter: tmcmahon | Owner: dconnolly
Type: task | Status: accepted
Priority: major | Milestone: cohort-char-als
Component: data-sharing | Resolution:
Keywords: als-cohort | Blocked By: 245, 284, 527
Blocking: |
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Description changed by dconnolly:
Old description:
> "We will allow 3 months from distribution of the surveys for all survey
> responses to be completed. When we are ready for analysis, the sponsor
> (University of Kansas Medical Center) will approach the local ITO to
> retrieve the GPC survey data and selected EMR information for the entire
> cohort which will be transmitted in a de-identified data set. The
> following EMR data will be included for analysis: age, gender, race,
> ethnicity, living situation, occupation, and years of education."
>
> -- section **5.0 Data management and case report forms** of
> protocol from Herbelin Monday, February 09, 2015 11:40 AM (#208)
New description:
"When we are ready for analysis, the sponsor (University of Kansas Medical
Center) will approach the local ITO to retrieve the GPC survey data and
selected EMR information for the entire cohort which will be transmitted
in a de-identified data set. The following EMR data will be included for
analysis: age, gender, race, ethnicity, living situation, occupation, and
years of education."
-- section **5.0 Data management and case report forms** of
protocol from Herbelin Monday, February 09, 2015 11:40 AM (#208)
Details are in comment:16
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Ticket URL:
<http://informatics.gpcnetwork.org/trac/Project/ticket/380#comment:22>
gpc-informatics <http://informatics.gpcnetwork.org/>
Greater Plains Network - Informatics
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