Hi Hugh,
I am a Scottish ex-GP now working in informatics and have been lurking
on this lively list for a wee while. I am doing some work for SCIMP
which developed the Emergency Care Summary (ECS) and I thought I should
pitch in, although ECS is not one of my projects
ECS works by culling data from polled GP systems and transmitting an XML
file to a shared server application called SCI Store and stored in the
patient record as an XML blob. This data is available to a limited
(so-far) number of out of hours providers via a web browser Patients can
ask to opt-out of the process altogether, in which case there data is
not extracted. In addition the Out of hours provider must get specific
consent from the patient before accessing the ECS.
The data transmitted is currently limited to demographics, adverse
reactions/allergies and current medication which has been widely
acceptable to the profession and patients. I believe only about 20 have
opted out vs 10,00 data extractions.
It would be very simple technically to extend the data extraction to
include clinical histories (Read coded) but this remains rather more
contentious because of anxieties around confidentiality and data
quality. Patient surveys have been very positive with 70% expressing
support for their clinical histories being transferred without their
explicit consent, but of course the remaining 30% may have perfectly
legitimate concerns for anxieties.
So far so good but some tricky issues lie in wait!!
Regards,
Ian McNicoll
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