"Mike" <[EMAIL PROTECTED]> writes:
Hi Sue,
It's very common for children with mito disorders to appear perfectly
healthy for a time, anywhere from a few days to 11 or 12 years (in my
wife's case, she had no obvious symptoms until the age of 26.) Children
with these disorders can exhibit a wide or narrow range of a large group of
symptoms, most of which can vary from very slight to life threatening.
There's such a wide range of disorders that stem from mitochondrial
problems (cerebal palsy, for instance is one of them), that the ratio of
someone having a mito disorder is believed to be just 1 in 4000.
Granted, 10 is the largest number of children that I've heard of possibly
being lost due to a mito disorder, but I can also see where this could
possibly happen due to the unique circumstances. The Noes hold to the
beliefs of the Catholic church, so no birth control was practiced short of
abstinence. Back in the 60's and 70's, mito disorders were unknown (when
Karen, my wife, was diagnosed, there were fewer than 30 cases diagnosed
world-wide; and this was in 1987), and genetics was an infant science. If
there was a mito disorder involved, it could have very well taken the life
of each of the children, and yet have been overlooked by the best medical
minds available back then to the authorities. Even Mrs. Noe's apparent
mental instability can be explained by the presence of a mito disorder.
All this aside, I agree that all of the angles need to be examined, mito
disorder or not.
My personal concern stems from seeing all of the harassment that our own
folk go through with medical professionals who still don't know enough
about mito disorders. Some of them have even been accused of
abusing/neglecting their children. I just want the Noe's to get a fair
shake.
TTFN
Mike <[EMAIL PROTECTED]>
----------
> Hi Kathy and Mike:
>
> I don't know what to think about this. I really don't. I guess there
> is a very good chance that this could be the answer, but what about the
> two that lived until they got home and then died within a very short
<snip>
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