"Mike" <[EMAIL PROTECTED]> writes:
Ron wrote:
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<snip>
> disease, and None of them would have been normal. My wife and I, in our
> combined 50 years of caring for newborns have seen only one child with
this
> rare disorder, and the child was so sick that it died in the NICU, and
was
> diagnosed at autopsy. These mitochondrial syndromes are being used to
> explain all of the disorders like Chronic Fatigue Syndrome, fibromyalgia,
> you name it. Blame your problems on "free radicals" mentality. No one
wants
> to admit that some crazy woman killed all of her children. I doubt that
> exhumed tissues would be able to show whether any of these children had
> mitochondrial syndrome.
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Ron,
You might find it interesting to visit our website (address below in my
signature). I've been dealing with mitochondrial disorders since 1982, and
would never make a statement about mito disorders without solid evidence to
back it up. I'm surprised that you based your conclusions on just that one
child's diagnosis. There's a search results webpage at our website that
includes 450 links to mito-related webpages, a page with links to other
excellent mito-related websites, and downloadable PDF-format files on
MELAS, the mito disorder that took my wife's life (and possibly the lives
of three of our children, all at birth or just prior to it), and a short
version of my wife's medical history. We have 127 families in our support
listserv, the MMRD-List, quite a few with multiple children and the mother
affected by their particular mito disorder.
... and ,yes, it would be well nigh impossible to exhume the bodies and
diagnose a mito disorder.
Please pardon the full signature...
TTFN
Mike Jackson, Director/Administrator
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MELAS Online Network & the Following Listservs:
MMRD-List -=- KIDS_MMRD-List -=- MITO_NET-List
Dad to Mike, a tiggerrific son (11 & nda), two Gerbils & a Bunny
Email: <[EMAIL PROTECTED]> - AOL IM ID: <Mike MMRD>
MELAS Online Network: <http://www.melas.org>
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