Sue Hartigan <[EMAIL PROTECTED]> writes:
Hi Mike:
I'm not at all familiar with this type of thing. I think that Ron and
his wife would be the ones who would be able to shed light on it.
If this is an inherited type of thing, and the mother is exhibiting
symptoms and/or signs of it, testing probably would be a good idea on
her. But these deaths took place so long ago, that I doubt that they
would be able to find out through exhumation and autopsy if this was the
cause. Again I have to leave this up to someone who knows.
Sue
> Hi Sue,
>
> It's very common for children with mito disorders to appear perfectly
> healthy for a time, anywhere from a few days to 11 or 12 years (in my
> wife's case, she had no obvious symptoms until the age of 26.) Children
> with these disorders can exhibit a wide or narrow range of a large group of
> symptoms, most of which can vary from very slight to life threatening.
> There's such a wide range of disorders that stem from mitochondrial
> problems (cerebal palsy, for instance is one of them), that the ratio of
> someone having a mito disorder is believed to be just 1 in 4000.
>
> Granted, 10 is the largest number of children that I've heard of possibly
> being lost due to a mito disorder, but I can also see where this could
> possibly happen due to the unique circumstances. The Noes hold to the
> beliefs of the Catholic church, so no birth control was practiced short of
> abstinence. Back in the 60's and 70's, mito disorders were unknown (when
> Karen, my wife, was diagnosed, there were fewer than 30 cases diagnosed
> world-wide; and this was in 1987), and genetics was an infant science. If
> there was a mito disorder involved, it could have very well taken the life
> of each of the children, and yet have been overlooked by the best medical
> minds available back then to the authorities. Even Mrs. Noe's apparent
> mental instability can be explained by the presence of a mito disorder.
>
> All this aside, I agree that all of the angles need to be examined, mito
> disorder or not.
>
> My personal concern stems from seeing all of the harassment that our own
> folk go through with medical professionals who still don't know enough
> about mito disorders. Some of them have even been accused of
> abusing/neglecting their children. I just want the Noe's to get a fair
> shake.
>
> TTFN
--
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