Hi,
while openEHR uses a reference model (= it enforces some assumptions and best practices about the domain) the clinical content is expressed by Archetypes and Templates. These define how classes from the reference model can be "orchestrated" and further constrained to represent meaningful clinical concepts. From a programmers perspective, it's a model-driven approach to tackle the complexity of healthcare and to establish semantic interoperability. So yes, you can create a model that represents a clinical registry for rare diseases.
Take a look at the Archetype Editor: http://openehr.org/downloads/archetypeeditor/home and the Template Designer: http://openehr.org/download_files/TemplateDesigner/TemplateDesignerSetup_2.6.1213.3.exe
These tools are commonly used to edit Archetypes and Templates. Also check out the Clinical Knowledge Manager where you can find and download existing models: www.openehr.org/ckm
There are several ways to build an openEHR system. I would not recommend to start from scratch. Pablo's Server is a good start but Ethercis is also worth a try (the Docker image is nice to get a quick start but you could also dive into the source code):
https://github.com/alessfg/docker-ethercis
To build your database, you will not need to do much programming when you use these solutions (you will need some "client code" to map, submit and query the data). Choose or build your Archetypes, create one or more templates, map your data (for example by using an XSD file that you can create by using the Template Designer, it's call Template Document Schema), store it and retrieve data using the Archetype Query Language. Of course this is the short version, maybe the community should think about a good tutorial.
Hope this helps a bit,
Birger
STAMATAKI-LOUKATOU GERASIMOULA <[email protected]> hat am 21. Februar 2017 um 20:34 geschrieben:
Thank you all for your immediate response.
For example can I use openEHR to build a database for a rare disease ?
So, I can use whatever language suits my need if I understand correct?
I really do not have any experience.
Quoting Alejandro Benavides <[email protected]>:It totally validates your questions, more when you enter the world of
standards, and the lack of experts with assertive answers (something that
is weak in this group), but that "another topic."
Really openEHR as other standards do not have specified which programming
language, database, network infrastructure, etc. should be used, this
depends on the type of need you present.
I agree to ask the question to the group as there is very little
documentation on what it means to bring the standard into practice. The
first thing is to understand what the standard is used for, in what
clinical domain you want to implement it and see what is available (open
source or private). I think it could help you a lot more by being a bit
more specific in what you want to know.
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2017-02-21 12:49 GMT-06:00 Pablo Pazos <[email protected]>:>> Hi,>>
>> openEHR is a specification, not a software system.
>>
>> There are many implementations. Like https://github.com/ppazos/
>> cabolabs-ehrserver
>>
>> Regards,
>> Pablo.
>>
>> On Tue, Feb 21, 2017 at 3:43 PM, STAMATAKI-LOUKATOU GERASIMOULA <
>> [email protected]> wrote:
>>
>>> Good evening,
>>>
>>> I am a postgraduate student in Bioinformatics and it may seem stupid but
>>> I would like to ask you a few questions about openEHR , as I was unable to
>>> find or understand them.
>>>
>>> What database openEHR uses and what programming language?
>>> Is it possible to alter the schema in order to fit to my needs?
>>>
>>> Thank you in advance,
>>> Mema Stamataki.
>>>
>>>
>>> _______________________________________________
>>> openEHR-technical mailing list
>>> [email protected]
>>> http://lists.openehr.org/mailman/listinfo/openehr-technical_
>>> lists.openehr.org
>>>
>>
>>
>>
>> --
>> Ing. Pablo Pazos Gutiérrez
>> Cel:(00598) 99 043 145 <+598%2099%20043%20145>
>> Skype: cabolabs
>> <http://cabolabs.com/>
>> http://www.cabolabs.com
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>>
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>>
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