Hi,

If this seems scary and confusing, that is normal

Essentially openEHR is a specification that allows people to build health
data repositories that are vendor and technology-neutral. openEHR CDRs are
very flexible health datastores that can immediately store and query new
kinds of clinical data, without any re-programming or database
reconfiguration.

As an implementer of e.g a rare disease registry application, you would
upload definitions of the data you need using 'templates' themselves built
of open-source 'archetypes' e.g blood pressure, lab test.

We are actually involved in helping build a very extensive Rare disease
register in the UK as part of a Genomics England project and are starting
to share our models at
http://clinicalmodels.org.uk/ckm/#showProject_1051.61.28. The whole of this
http://www.xmind.net/m/ZvDB dataset has now been modelled in openEHR and we
will be uploading it to the UK CKM site over the next couple of weeks.

To make use of these you need to get access to an openEHR CDR (Clinical
data repository). There are a number of commercial products available and
at least two high quality open-source engines.

You should definitely explore Pablo's Cabolabs CDR
https://github.com/ppazos/ and
the EtherCis CDR https://github.com/ethercis/ethercis

I can also arrange access to a free cloud-hosted CDR via the NHS
Code4Health program, for demo use only.
https://code4health.org/platform

For an overview of openEHR
https://www.slideshare.net/OceanInformatics/smart-data-smarter-healthcare

For an overview of  the clinical modelling aspects:
https://www.slideshare.net/OceanInformatics/smart-data-smarter-healthcare

and Pablo has some great presentations on the technical aspects of CDRs but
you almost certainly do not want to try to build your own
https://www.slideshare.net/pablitox/design-and-implementation-of-clinical-databases-using-openehr?qid=87811c0b-44fb-434d-9123-79793add44ba&v=&b=&from_search=1

Hope this helps - more information on your project would help us point you
in the right direction.

Ian



Dr Ian McNicoll
mobile +44 (0)775 209 7859
office +44 (0)1536 414994
skype: ianmcnicoll
email: [email protected]
twitter: @ianmcnicoll


Co-Chair, openEHR Foundation [email protected]
Director, freshEHR Clinical Informatics Ltd.
Director, HANDIHealth CIC
Hon. Senior Research Associate, CHIME, UCL

On 21 February 2017 at 19:34, STAMATAKI-LOUKATOU GERASIMOULA <
[email protected]> wrote:

> Thank you all for your immediate response.
>
> For example can I use openEHR to build a database for a rare disease ?
> So, I can use whatever language suits my need if I understand correct?
> I really do not have any experience.
>
> Quoting Alejandro Benavides <[email protected]>:
>
> It totally validates your questions, more when you enter the world of
>> standards, and the lack of experts with assertive answers (something that
>> is weak in this group), but that "another topic."
>>
>> Really openEHR as other standards do not have specified which programming
>> language, database, network infrastructure, etc. should be used, this
>> depends on the type of need you present.
>>
>> I agree to ask the question to the group as there is very little
>> documentation on what it means to bring the standard into practice. The
>> first thing is to understand what the standard is used for, in what
>> clinical domain you want to implement it and see what is available (open
>> source or private). I think it could help you a lot more by being a bit
>> more specific in what you want to know.
>>
>>
>>
>>   <https://mailtrack.io/> Enviado con Mailtrack
>> <https://mailtrack.io/install?source=signature&lang=es&refer
>> [email protected]&idSignature=23>
>>
>> 2017-02-21 12:49 GMT-06:00 Pablo Pazos <[email protected]>:
>>
>> Hi,
>>>
>>> openEHR is a specification, not a software system.
>>>
>>> There are many implementations. Like https://github.com/ppazos/
>>> cabolabs-ehrserver
>>>
>>> Regards,
>>> Pablo.
>>>
>>> On Tue, Feb 21, 2017 at 3:43 PM, STAMATAKI-LOUKATOU GERASIMOULA <
>>> [email protected]> wrote:
>>>
>>> Good evening,
>>>>
>>>> I am a postgraduate student in Bioinformatics and it may seem stupid but
>>>> I would like to ask you a few questions about openEHR , as I was unable
>>>> to
>>>> find or understand them.
>>>>
>>>> What database openEHR uses and what programming language?
>>>> Is it possible to alter the schema in order to fit to my needs?
>>>>
>>>> Thank you in advance,
>>>> Mema Stamataki.
>>>>
>>>>
>>>> _______________________________________________
>>>> openEHR-technical mailing list
>>>> [email protected]
>>>> http://lists.openehr.org/mailman/listinfo/openehr-technical_
>>>> lists.openehr.org
>>>>
>>>>
>>>
>>>
>>> --
>>> Ing. Pablo Pazos Gutiérrez
>>> Cel:(00598) 99 043 145 <+598%2099%20043%20145>
>>> Skype: cabolabs
>>> <http://cabolabs.com/>
>>> http://www.cabolabs.com
>>> [email protected]
>>>
>>> _______________________________________________
>>> openEHR-technical mailing list
>>> [email protected]
>>> http://lists.openehr.org/mailman/listinfo/openehr-
>>> technical_lists.openehr.org
>>>
>>>
>>
>
>
>> --
>> *Alejandro Benavides Garro*
>> *Acronym Software*
>> Especialistas Informáticos
>> Gestión de Imágenes Médicas Digitales
>>
>> *Móvil:* +50688285301
>> *Skype:* abenavidescr
>> *Email:* [email protected]
>> *Web:* http://www.acronymcr.com
>>
>>
>>
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>>
>
>
>
>
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