Motor Neurone Disease.

I think it's called ALS in the States.

In response to the question - the use of breath based relaxation techniques is going to depend on the presentation of the person's MND. Some types have less "airway" symptoms - I know a few of the OTs at the specialist neurological disorder facility here and am pretty sure they use some guided imagery based relaxation with their clients.

I'd caution against techniques that involve progressive isometric muscle contractions though due to fewer motor units being present in people with this set of conditions.

I think the role of OT in the lives of these clients can be a very significant one and certainly often gain a great deal of professional satisfaction from working with these people and their families. Wishing you well with your interventions.

cheers,
David Harraway
OT
Melbourne Australia
















Ron Carson wrote:
I'll be the "dumb"one and ask, what's MND?

----- Original Message -----
From: Lucy Simpson <[email protected]>
Sent: Sunday, January 18, 2009
To:   [email protected] <[email protected]>
Subj: [OTlist] MND - relaxation techniques

LS> I am an avid reader of this list, and now seek some advice!
LS> I am a Physical disability community OT and am currently seeing
LS> an MND patient. We are addressing her environmental/adaptaion
LS> needs as they arise she is having a wet room installed, and a
LS> closomat toilet currently. She is now wheelchair dependent, but independent 
with transfers.
LS> LS> We are also looking at symptom management and quality of life.
LS> One area we are looking at is fatigue and anxiety management.
LS> Fortunately this patient is very realistic and fully engaging in therapy.
LS> LS> I am aware of basic relaxation techniques, and deep breathing is
LS> a core element of these techniques. I have heard that as MND is
LS> synonimous with breathing difficulties, teaching deep breathing
LS> techniques can actually result in increasing anxiety as it draws
LS> attention to an area of concern...... LS> LS> Does anyone have advice on MND specific relaxation techniques or re general relaxation resources? LS> LS> be grateful for any input


LS> Kind Regards
LS> Lucy Payne


LS> For Quality Stationery and Greetings Cards check out this website: LS> www.phoenix-trading.co.uk/web/lucysimpson LS> Save it in your favourites for the next time you need cards. LS>
LS> --- On Sun, 18/1/09, [email protected] <[email protected]> wrote:

LS> From: [email protected] <[email protected]>
LS> Subject: Re: [OTlist] Fn. Mobility ~vs~ Gait Training
LS> To: [email protected]
LS> Date: Sunday, 18 January, 2009, 7:29 PM

LS> I don't have a direct answer to that.? I guess it depends on where your
LS> level of expertise falls in this area.? I have it easy, because I work with 
an
LS> amazing group of PTs who teach me on each patient how they want them to 
walk.?
LS> That way I can help the patient receive the much needed practice in this
LS> area,but at the same time I can consult with the PT since I did not have 
this
LS> area taught in school.? I always attempt to complete the sit to stands and 
the
LS> low level functional mobility in a context of an occupation that the 
patient has
LS> determined important a) walking to dresser to gather clothes b) walking to 
the
LS> toilet to complete toileting c) walking to the dining room chair for meal 
time.
LS> It is then amazing when the patient can perform the functional mobility, and
LS> then carryout out the occupation!.?
LS> Ninety nine percent of the time when I ask a patient what their goals are 
for
LS> rehab they state to "walk better".? I then ask them why they want to
LS> walk better.? They often look at me strangely and then state so I can get 
to the
LS> kitchen and cook, do the laundry, go out to eat with my friends, etc etc.? 
The
LS> occupational goals nearly write themselves.

LS> Chris Nahrwold MS, OTR


LS> -----Original Message-----
LS> From: Ron Carson <[email protected]>
LS> To: [email protected] <[email protected]>
LS> Sent: Sat, 17 Jan 2009 7:38 pm
LS> Subject: Re: [OTlist] Fn. Mobility ~vs~ Gait Training



LS> I like your definitions.

LS> In  the  two  cases  you mention, the patients are already ambulatory.
LS> What if they weren't and still wanted to achieve the same outcomes?

LS> ----- Original Message -----
LS> From: [email protected] <[email protected]>
LS> Sent: Saturday, January 17, 2009
LS> To:   [email protected] <[email protected]>
LS> Subj: [OTlist] Fn. Mobility ~vs~ Gait Training

cac>> To me functional mobility is the process of getting to point A to
cac>> point B regardless of compensation techniqes in the context of an
cac>> activity  or  a desired functional outcome.? Just the other day I
cac>> had  a  patient  who  wanted  to  cook  and set the table for her
cac>> family,  to  achieve  this  desired  outcome a walker tray had to
cac>> implemented  with  further practice of safe strategies.? Just the
cac>> other  day  I had a hip replacement patient who wanted to be able
cac>> to   get   to  the  bathroom  safely  without  breaking  her  hip
cac>> precautions,  so?  raised  toilet  was  implemented  with further
cac>> practice of safe strategies.

cac>> Gait  training  is when a therapist observes a patient's gait and
cac>> objectively  determines what movement functions?cause the patient
cac>> to  walk  "abnormally".?  They then use therapeutic
LS> techniques to
cac>> faciliate  a normal gait pattern.? I see this being used by PT in
cac>> neurological rehabilitation.?

cac>> Chris





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