There was a recent (last couple of weeks) story on this in the Weekend
Australian, I think. The story involved a baby from WA who was flown to
Melbourne for the surgery. The story in the Australian seemed to me to focus
on u/s picking up the defect so that the baby could be born in a facility
with the surgery capabilities. The WA baby had either not been surveyed with
u/s prior to birth OR the u/s survey had not picked it up, this was not
clear to me. I got the idea that the Melbourne hospital is the only hospital
in Australia with the staff and facilities to provide the care. Don't know
where this care is available overseas.

marilyn
----- Original Message -----
From: "Carole Gilmour" <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>
Sent: Saturday, November 30, 2002 7:59 PM
Subject: Re: [ozmidwifery] When birth and death come together


> Dear Lieve
> This sounds like hypoplastic heart.  A colleagues' daughter gave birth to
a
> son in June with this condition(undiagnosed prior to birth).  He was good
at
> birth and went blue after a few hours and was transferred to the Royal
> Children's Hospital in Melbourne, since when he has had 2 operations and
was
> finally allowed home in October.  I'm not sure what the long term
prognosis
> is I think he needs another operation in a couple of years.  He is a
> beautiful child and has lots of smiles for everyone.  So perhaps your
client
> might be able to explore the latest advances in heart surgery and talk to
> some of the experts - I do not know what the success rate is and how many
> surgeons there are around the world capable of doing the operations.
> best wishes to both you and the mother
> Carole
>
> ----- Original Message -----
> From: "Lieve Huybrechts" <[EMAIL PROTECTED]>
> To: <[EMAIL PROTECTED]>
> Sent: Saturday, November 30, 2002 7:46 PM
> Subject: [ozmidwifery] When birth and death come together
>
>
> > Dear list,
> >
> > I have a mother due in march. During  the ultrasound on 22 weeks the gyn
> > discovered something was wrong with the heart of the baby. The expertise
> > ultrasound showed that the left side of the heart is not developed. The
> baby
> > will die soon after birth when the function of cord and placenta will
> stop.
> > We had a lot of talks then and I was happy to support them in their
> choices
> > and to give them information.
> > The parents decided to go on with the pregnancy  and to have a
homebirth.
> > They enjoy the baby as long as he has to live. She comes to the
> birthcentre
> > every week and talks with the other moms and they are also very
supportive
> > for her.
> > I was wondering if someone has excperience with a likely situation and
can
> > share it with me.
> >
> > Warm greetings
> > Lieve
> >
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>
>
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