Marty, I'm all for talking with others with ESS. Of course me with mild hyperthyroidism and diabetes.....which now I can barely keep my BS's up since I lost 50 lbs in the last four years plus my pituitary problems and the ESS it's hard to figure out what is what. I'll do my best. FYI so far my two MRI's (I have another one due soon) said Rathke's Cleft Cyst vs microadenoma and the second pituitary focused said 3mm microadenoma on the right side of the pituitary with the stalk off midline and the pituitary gland is flattened at the bottom of the sella turcica. What I believe ESS could possibly be doing to me is headaches, I got "sick" two years ago, headaches were never a problem before....they were last on my list of problems before I got "sick". I've had many "head" related symptoms that I never had in all my years. I feel like there is swishing in the middle of my head and I've been off balance for a year now. The "swishing" or sometimes "vibrating" sounds in my head tend to be when I get up from a sitting or laying position. It's gotten to the point that I'm thinking of getting a cane. I just fell the other day as I couldn't stop myself when I went backwards a little. I have unexplained swelling on the side of my head that even an ENT can't explain. I get throbbing on the outer right side of my head intermittently. Chronic head infections. Incredible fatigue and weakness. I'm trying to stick to the head symptoms but I'll throw in my incredible hot and cold intolerance. Most of my symptoms whatever they are I believe could be caused my the CSF pressure on my pituitary. The pressure of the CSF can cause the pituitary to flatten so maybe that's what happened to me two years ago. They say ESS is congenital but it's not in all cases and I don't think they ever take other things into play. Why would a normal person who was an early bird her whole life, now wake up hot, sick, weak, and barely able to function. I also have sharp pain that tends to be towards my right ear and now am having right eye pain. My field vision tests have always been normal. Also, no ENT or FP can find anything visually wrong with my ears. I have intermittent mild to severe aching at the base of my spine. I do have some arthritis in my spine, but the aching didn't start until after I started getting sick with my endo symptoms two years ago. I believe anything that effects the pressure in the CSF could effect the base of the spine but that's just my theory. One more odd thing. For some time I've had a spasm that starts in the base of my spine and goes directly up my spine no where else on my back, and ends in my head with my head jerking for 2-3 minutes or so until it passes. It's been something I've had and told doctors about and it was dismissed as stress. I think it may be related to the ESS. I do get "stress" related spasms but they are diffuse ...all over the area. I think that's different than having a spasm exclusively going from one end of the spine to the head. Well, sorry this is too long and wordy I'll try to do in more of a list form in you prefer. Thanks Marty for trying to initiate connections with those of us with ESS. Lisa Strecker | 