I agree with Jean's advice. It is all a matter of
degree, and non-specialists don't know where that line lies. There are
elevated prolactin levels, and then there are elevated prolactin levels.
If you suffer from pit problems and have a prolactin level of 200 or 300, that
is an issue, but as Jean states, the issue quite possibly is NOT a
prolactinoma. On the other hand, if
you have a prolactin level of 15,875, as I did, that is undoubtedly a
prolactinoma (though you may still have other issues and problems caused by, or
related to, that high a prolactin
level).
See someone who specializes in these conditions and
really knows what they are doing, instead of a doctor with less experience who
may jump to a conclusion.
Pit
Tumor- High Prolactin - Fatigue
Reply
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| From: tumorout2000 |
Another way to state the elevated
prolactin level issue: Many doctors assume that elevated
prolactin levels mean a prolactinoma which is a very common type
of pituitary tumor. The pituitary center I went to stated that
almost always prolactin levels under 200 are NOT prolactinomas.
If the elevated prolactin level is caused by pressure on the
pituitary (versus the productin of prolactin by a prolactinoma)
it is useless taking meds to try to shrink the tumor, it will
not work. I was missdiagnosed with a prolactinoma when I had
elevated prolactin levels, so I know what I am talking about
here. It is critical for pituitary patients to be seen by
experts in this field...it saves the patients years of
treatments that may be in vain. Fatigue is a common symptom for
pituitary patients. All hormone levels should be closely
monitored by a pituitary specialist...it will make a world of
difference to be kept in balance. You can call me if you want:
541-757-9663. Jean in
Oregon | |
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