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Non Typical Hyperparathyroid Surgery

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  Recommend Message 10 in Discussion
From: PTResearcher2

Hi Wshn,
 
Did your daughter have the venus sinus sampling test done? Have they tested her for additional endocrine tumors?
 
I am sorry to hear that you also have hyperparathyroidism. Have you had additional tests done? Do you have symptoms of hypercalcemia?
 
If your hyperparathyroidism is related to M.E.N. or F.M.E.N.1, there is a 50% chance of passing on the gene that causes the disease. It is a rare disease, but it is highly genetic.
 
Have you decided what your next course of action should be? Have you considered consulting Dr. Norman for his opinion on what should be done? If you are determined to have multiple endocrine neoplasia, Dr. Robert Gagle is an expert on M.E.N. at MDA:
 
Take care. You and your daughter are in my prayers.
 
Meri

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