Hello Judy in Kentucky! We are glad you found us too! Thanks for the long story (sorry I hadn't responded earlier).
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I started having migraines too, about 2 years before I was dxd with a pituitary tumor. In my case though, I went to a neurologist, and he prescribes a headache "buster", and assumed my headaches were normal and put me on a regimen to teach my body to not have headaches - didn't work for me and ended up seeing a headache specialist - who also was a neurologist. At this time, we knew I had the pituitary tumor and he did prescribe a headache preventative which worked very well for me. I get a chuckle out of your term "Dr. Vicoden", on account I saw one endo who I refer to as "Dr. Prozac". lol...
You are very lucky to see a PA who is awesome.
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I am glad she took things seriously and took charge!
Don't feel like you arent' the only one who said "WHAT IS THAT!" because many of us never heard of or about pit tumors before we started down this journey. I am glad your medical team hopped on board quickly with the MRI and the referral to neurosurgery as a hemmorhaging tumor is nothing to play with and can be very dangerous. Your tumor was a macroadenoma because it was over 1cm. I understand your feelings when they told you they couldn't get it all on account of it being so near critical brain structures.
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I understand though how they could say post of that they got it all. I had a neurosurgeon explain to me that with macroadenoams, not only do they fill up the pituitary cavity (and can extend beyond), but when they open up the sphenoid sinus and begin to retract the tumor, the tumor pretty much pushes itself to the opening as that is where the pressure lets off. Often they cannot tell until after surgery when the MRI has done, if there is residual tumor left in the cavernous sinus area.
I am glad you pushed your ENT for that CT scan. Infection needs to be closely watched post op in all pituitary surgery patients.
We can also appreciate consulting with so many endocrinologists. It is hard to find a good pituitary specialist, and there are differing opinions among even the specialists on how best to manage our individual issues.
You need to talk with your human resource group to decide what options are best for you. It is obvious that the current situation is not working and is causing you great stress and heartache.
Will keep you in my prayers.
Minnie
