----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: PT3688041 Message 3 in Discussion I wish I could help you with your decision but I am in a similar situation. Transspenoidal surgery in 2004 for acromegaly. IGF-1 levels halved but not normal. I did not tolerate Sandostatin nor did it completely control my IGF-1 levels. I now have tumor regrowth in the right cavernous sinus. The tumor is impinging on the cranial nerves that run through the area causing decreased sensation on the right side of my face and double vision and is up against the carotid artery. I will be scheduled for cyberknife within the next week. I was also told that hypopituitarism is no big deal "just a couple of pills". Thank you hunus for your input - now if only the doctors would listen to that. Luckily, the tumor is located away from the pituitary gland itself and there is rapid radiation fall off so I am being told that there is a good chance that the pituitary gland would not be damaged by the radiation. I really have no choice at this point as the residual tumor is in an area that is inoperable and if allowed to continue to grow will cause increased double vision and difficulty with sensation and function on the right side of my face. Good Luck. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
