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New Message on Pituitary Chat

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From: debbiep20081
Message 1 in Discussion

Hi my 15 year old daughter  was diagnosed with a macroprolactinoma two years 
and two months ago , she has been on  cabergoline and everything was going 
fine, until it stopped responding and they increased the drug twice before she 
started acting really out of character and having horrible thoughts self 
harming etc, they stopped the drug immediately and in time she returned to 
normal but the tumour started to grow and the consultant said it had started to 
grow up which was quite dangerous as it could cause blindness etc ..well she 
had never had eye trouble and they have started her back on a low dose of the 
cabergoline which has stopped the mega migraines but lately she has complained 
of her eyes aching, in fact she was crying in pain last night and one of her 
eyes was moving independantly, i was wondering if anyone else had experienced 
anything like this and if so what was the outcome. The neurologist said he may 
have to operate, but the endos want to persist with the drug ...i am in a bit 
of a dilema as to what to think...or do.

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