----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: liltrubin Message 2 in Discussion I went from very little impairment to total disability before surgery in September 2007. I am now regaining most of my function back including vision and ability to drive. I consider myself very very blessed and the only medication I currently take is estrogen. Everything has returned to normal for me post op. Keep your chin up!!!! Success has a lot to do with your surgeons skills!!!!! HUGS, Tina On Sun, Mar 16, 2008 at 3:21 PM, loki525 <[EMAIL PROTECTED]> wrote: New Message on Pituitary Chat Has anyone resumed a normal life? Reply Reply to Sender Recommend Message 1 in Discussion From: loki525 I was diagnosed about 14 months ago and have been receiving treatment from an endocrinologist and internist that I have a lot of confidence in. I'm currently on Sandostatin LAR 40mg, testosterone gel and a number of other medications for hypertension and hyperglycemia related to the acromegaly. The plan is to shrink my tumor and attempt a resection when it's small enough to maximize the chances of a surgical cure. My question is: Is there anyone out there who's been through this and been able to resume something of a normal life? Reading the posts, it's one horror story after another. Since starting on the Sandostatin, my quality of life has shrunk to about zero. I have constant pain, depression, fatigue, my joints are freezing up, I'm sick all of the time and my wife is about ready to throw me out of the house. Is there any chance surgery might actually help me or is this what I have to look forward to for the rest of my life? My work is the only thing I've got and I don't know how much longer I can do that. Is there any kind of light at the end of the tunnel? The Sandostatin and testosterone were both supposed to make me feel better but the former seems to be dragging me down and the latter doesn't seem to be doing much of anything at all. One of the docs I'm seeing is an internationally know expert in this disease but although he's attentive, nothing we seem to do works to make me feel any better. The tumor seems to have stopped shrinking but I'm dreading surgery for fear that's going to be another failed hope, a lot of pain and discomfort for nothing. I'd just like to hear a success story, if there are any. View other groups in this category. To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. Need help? If you've forgotten your password, please go to Passport Member Services. For other questions or feedback, go to our Contact Us page. If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. Remove my e-mail address from Pituitary Chat. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED]
