----------------------------------------------------------- New Message on Pituitary Chat
----------------------------------------------------------- From: ChiaChoctaw Message 9 in Discussion I think one of the most serious things to consider before surgery would be where the tumor is located and what the odds of permanent damage to your pituitary gland would be. Even with the best surgeons, a non functioning gland will need long term treatment. My husband's tumor shrank considerably with only 1 month of meds and still we were told surgery wasn't only necessary but the "only" route. It all happened very quickly, not to mention the severe mental changes the Bromocriptine was causing. I could not find any information at that time on Pit tumors. Since that time we have been told that his surgery was completely unnecessary. There are some serious side effects that folks have mentioned on this board that range from depression, to sinus infections, numbness, chronic fatigue. It seems that each case is seriously specialized. My husband recovered very quickly from surgery, but it was not successful. I have read from people on this board who have had several surgeries. My husband does take medication from the residual tumor, but there was almost a 100% chance that he would have residual tumor. He is treating his tumor now exactly as he did before surgery. It was an unnecessary risk on his part, I believe. Just do your homework and get lots of input. ----- Original Message ----- From: Pituitary Chat To: [email protected] Sent: Sunday, March 30, 2008 9:42 PM Subject: Re: Has anyone resumed a normal life? New Message on Pituitary Chat Has anyone resumed a normal life? Reply Recommend Message 8 in Discussion From: chiruchiru2003 <HTML>hi everyone, sorry to jump in suddenly now. If my experience helps you a little, I will be happy. I had Dostinex (medical treatment) for 1 year, even at maximum dose, but my tumor didn't shrink at all, and developped side effect like depression. So I had to stop and my only choice was surgery. I had a wonderful surgery with Dr. Post who is very famous in this issue, He is Mount Sinai Hospital in NYC. Since I had the surgery in 2004, everything became normal, so far perfect. I returned to work as trader in bank one month later, and still doing completely fine. Completely normal life. If you can find a wonderful doctor, you will be saved and recover quickly. Hope you will do well. Good luck. In a message dated 3/30/2008 10:33:34 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Subj: Re: Has anyone resumed a normal life? Date: 3/30/2008 10:33:34 PM Eastern Daylight Time From: [EMAIL PROTECTED] Reply-to: [email protected] To: [email protected] Sent from the Internet ----------------------------------------------------------- New Message on Pituitary Chat ----------------------------------------------------------- From: mommyof8 Message 7 in Discussion Where did you have surgery? Who was your neurosurgeon? Everyone says that the first choice for treatment of a pituitary tumor is surgery. However, both neuros I saw said meds first, surgery later. Most people on this board seem to get surgery first and then meds, if needed. Did you or do you now need medication to treat any residual tumor? Thanks for answering my questions. I am working with a therapist doing EMDR therapy to get myself more comfortable with the idea of medication and/or surgery. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? If you've forgotten your password, please go to Passport Member Services. http://groups.msn.com/_passportredir.msnw?ppmprop=help For other questions or feedback, go to our Contact Us page. http://groups.msn.com/contact If you do not want to receive future e-mail from this MSN group, or if you received this message by mistake, please click the "Remove" link below. On the pre-addressed e-mail message that opens, simply click "Send". Your e-mail address will be deleted from this group's mailing list. mailto:[EMAIL PROTECTED] ************** Create a Home Theater Like the Pros. Watch the video on AOL Home. (http://home.aol.com/diy/home-improvement-eric-stromer?video=15&ncid=aolhom00030000000001) View other groups in this category. ----------------------------------------------------------- To stop getting this e-mail, or change how often it arrives, go to your E-mail Settings. http://groups.msn.com/PituitaryChat/_emailsettings.msnw Need help? 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