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New Message on Pituitary Chat

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From: mommyof8
Message 2 in Discussion

Hi Linny, I'm sorry for what you are going through.  I am on Sandostatin 3x a 
day.  My endo wanted me to go on the LAR but I said no.  I know that people 
think I'm crazy but I would much rather stick myself with that tiny needle on a 
daily basis because it's working for me and I don't want to change what is 
working.  However, in your case, it seems that what you are doing isn't working 
and maybe you need to insist that they try something else.  I can give you a 
bit of information that might be of help.  I've posted it on this site before 
but I'm not sure where it is.  My family doctor told me that when you are on 
Sandostatin, your body needs a supplement of CoEnzyme Q10 (a good quality brand 
from a health food store).  I'm not sure if our body stops producing it or if 
we just don't have enough of it.  Whatever the case, I asked my endo about it 
and he concurred with my family doc.  I have consistently taken the supplement 
since starting the Sandostatin and I am not having any side effects.  It is 
definitely worth a try for you.  The Q10 will not hurt you in any way.  If you 
want more info, I will get it from my doctor and pass it along to you. Take 
care, Alene

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