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New Message on Pituitary Chat

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From: PT3688041
Message 1 in Discussion

I am 4 years post transphenoidal surgery and 1.5 years post cyberknife. My 
IGF-1 levels have been running in the midrange of normal with 20 mg of somavert 
every 3rd day. Went for a check up last friday with the neurosurgeon and 
neuroendocrinologist. The tumor is still there and is shrinking slowly - down 
~1 mm since last MRI about 9 months ago. I was not impressed as 1 mm sounds 
like it could be within measurement error. I was surprised when the 
neurosurgeon recommended no more MRIs unless there is a radical change and to 
determine the effectiveness of the cyberknife by hormone levels alone. Then the 
neuroendocrinologist further surprised me by taking me off the somavert for the 
next 6 weeks to see what happens to my IGF-1 level. He stated that he will 
doing this once a year until , hopefully, the IGF-1 remains within normal 
limmits without the somavert - interesting. I just hope my face does not swell 
up like it did before my original surgery. 

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