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From: ChiaChoctaw
Message 3 in Discussion
I think the difference may be in how the MRI works. It
can't catch every mm of image and from what I remember them telling me, the
distance between the slices can be as small as none to 10mm. So, depending
on the machine and a host of very complex contrast and imagining
issues, that could be what varies your tumor size. Just my
opinion, but I have a herniated disc in my back and the bulge is pushing on a
nerve. The MRI showed that it was not, but the orthopedic doctor said it
most probably was b/c of my symptoms and that the area touching the nerve could
be in the 5mm gap on my MRI, so he diagnosed it symptomatically.
Hope that helps. I did not know until then that a MRI
does not reflect all the tissue within the scan perimeter.
Beka
----- Original Message -----
From:
cat
To: Pituitary Chat
Sent: Monday, December 22, 2008 6:48
PM
Subject: Re: MD checkup
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MD
checkup
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Message 2 in
Discussion
From: cat
I dont trust some of the MRI readings we get..I had surgery
in 1998, tumor showed no growth in 1999 but when checked in
2000
grew 1mm close to the same size as it started, 2.5 cm. Had to
have radiation in 2001...I have MRIs every year....One time
reading would be 1.8 cm and next year 1.5cm, next
year 1.0 cm, next year 1.5 cm again then 7mm back up to
1.0....but every year its done by a different tech and how they
read it..None of my other Drs read the MRI...My regular Dr says
that a Radiolgist or Oncologist read them and compare to last
one so no one else needs too.... I asked my Endo this last time
if he reads them and he said no, he said ,
"I use to but its a hassel and most on disks now
so cant read it anyway, not even sure if we have
the software to do it"
They say the tumor is smaller than before radiation and
away from my optic nerve and caroid artery and is just sitting
there so i guess its all ok..still there and will have MRIs
next
year too...I have had 13 or 14 MRIs since 1998.. I am on growth
hormone replacement for 2 years now so I think i need to have
MRIs every year even tho the reported sizes may differ the dr
says it has looked the same size for 3 years...Weird how such a
small little thing can cause such a big pain in the
butt!!!!
Cat
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