I had problems finding housing, care, etc.. when I was coming out of rehab.  I wrote the papers and was on the news as well.  Some calls came to the rehab center from regular people with ideas.  I got really lucky.  A local man that owns a hotel here modified a house for me.  If you are not getting responses by letters then call them.  A lot of our state reps have social workers on their staff.  Keep pushing at them.  Let them know how your life is on hold in a nursing home and what you can be accomplishing if you weren't where you are.  Be loud and make lots of noise.  Trust me, it works.  Keep me updated please.  I would love to know how you are progressing I'm sue in time things will work out for the best.
Stacy
 
"People who hate you do not win unless you hate them. Then you destroy yourself"
----- Original Message -----
Sent: Monday, August 16, 2004 11:24 AM
Subject: [QUAD-L] how do i get out of here?


  right now i am stuck in a nursing home in new jersey.
i contacted the statewide independant living council.
they inturn assigned me a community choice counselor from
the office of long term care options.
   the counselor has absolutely no clue of  what programs are availble for me
to get into alternative living situation that's not so restrictive.
i'm on a vent while i sleep, so everywhere i turn everyone
thinks i need icu level care... i lived on my own for years
with very little skilled nursing care.
i contacted state and local government represenitives, with
no replies.
my brother thinks just because i'm not being abused that this
place is ok, it ain't.
i have completely run out of options.
please anyone with any ideas?
thanks-

-dave headman
c4 25yrs post

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