Hi River,
I had a kind of similar experience as you after I had my SP put in five years ago. The surgery was fine and everything was great until my urologist had me come back to the office to have my catheter changed for the first time. I think it was four or six weeks later. Well after he changed it and I went home, I started noticing that in my bag was this whitish fluid stuff, not urine. Then I started having AD and feeling like I had to urinate (I have good sensation and can start urinating on my own).
So I call the doctor back and he had me come back right away and sent me to have a CAT scan of my bladder. It turns out that he changed the catheter too soon before the hole was healed and so the catheter slipped into the abdominal wall. The catheter was removed and the hole had to be closed up and I had to have the surgery over a month later. I can't remember if I was put on antibiotics for the catheter going into my abdominal wall, but probably was. I've been very happy with the SP because it gave me so much more freedom than being cathed like I had been for six years. So if I were you I would definitely have it done again and either find a new urologist or chalk it up to a bad experience. I'm sure it will go smoothly the next time. I definitely understand the frustration and fear about having it done again. We feel like guinea pigs to these doctors a lot of the time.
Good luck & I'm glad you are feeling better! Corie
----- Original Message ----- From: "River Wolfe" <[EMAIL PROTECTED]>
To: <[EMAIL PROTECTED]>; "Quad List" <[email protected]>
Sent: Monday, January 24, 2005 5:40 AM
Subject: Re: [QUAD-L] my ordeal
Hi all,
Thank you all for your support and replies. I am definitely checking into my options as far as legal action. Especially after posting to some other groups and getting information from nurses. They took the supra-pubic OUT and now I have to get it again, that is if I even want one at this point.
You all may think I'm good at confrontation ;-)but...I'm just not sure I want to discuss this with the office nurse or my Dr. Maybe I'd rather move on. The trick is finding another urologist who is knowledgeable of paras and quads. THis guy came highly recommended (go figure).
By the way, I'm feeling MUCH better today. ;-)
River
