Hello again,
My name is Lana and my son Gabe is 32 and has a C4-5 SCI, 10 yrs post. He also has other disabilities. He cannot participate right now. Question: Gabes BP goes up in the afternoon around 3:00 everyday. When he lies down it goes right back down. So it appears to be AD to me. He developed a really bad pressure sore in the hospital last summer, but it healed nicely. It is still pink. Is there anything else you guys think it could be? Its not a UTI. Im wondering if he has another kidney stone or another syrynx (sp). The timing and positional nature screams pressure sore, but its healed. Help!
I just joined again. I have been a member off and on for a number of years. Why all the discussion about issues that do not have anything to do with SCI, disability issues and quality of life? Dont we really need to discuss advocacy, legislation, life style issues, the slow death of the ADA and celebrate each others wins. Like being a grandpa!! God there is so much to discuss to make life better. We need to address disability discrimination not other types of discrimination.
I used to come here and there were real conversations about these issues. One of my favorite posts was from a person who managed to ride on a motor cycle. She described it in some detail. It inspired me and Im sure many to do and be more. Break the rules screw the boundaries. The support and advice I received after my sons injury kept me sane and in turn kept him sane.
Im involved in systems advocacy at a State and Federal level. There is so much to do, learn and be. We have so much to do for ourselves, loved ones and each other. Cant we please give the discrimination of others with different colors of skin alone. Dont drive off people who are assets here. If you need to discuss these issues go to sites that specialize in it.
Lana
Gabes mom
