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----- Original Message -----

From: Bob Kafka

Sent: Tuesday, January 03, 2006 3:42 PM

Subject: REAL PEOPLE-REAL VOICES

 

Dear Advocate for Home and Community Services:

ADAPT will be hosting a day documenting the institutional bias in America through the compelling stories of those who have personally experienced being warehoused in nursing facilities, developmental disabilities and mental institutions.(REAL PEOPLE-REAL VOICES).

It will be held Sunday, March 19, 2006 in Nashville, Tennessee.

Attached please find information about REAL PEOPLE-REAL VOICES and a letter inviting people to participate.

ADAPT would appreciate your assistance in distributing this information throughout your community.

If you have any questions please contact us at 512/442-0252.

The ADAPT Community

www.adapt.org

 

 

REAL PEOPLE - REAL VOICES

NO MORE STOLEN LIVES

Documenting the Institutional Bias in the American Long Term Care System

 

 

DATE: Sunday, March 19, 2006 9am-9pm

 

 

LOCATION: Hilton Hotel - Nashville, Tennessee - Volunteer Ballroom

 

 

PARTICIPANTS:

 

 

Up to 100 people with disabilities from across the US who have been in or are currently in a nursing home, developmental disability facility, residential hospital facility or mental health facility.

 

 

PANEL: Representatives from the following organizations:

 

 

National Council on Disability (NCD)

National Disability Rights Network (NDRN) (formerly NAPAS)

American Association of People with Disabilities (AAPD)

Department of Health and Human Services - Office on Disability

National Council on Independent Living (NCIL)

 

 

DOCUMENTATION:

 

 

Recording and transcribing of testimonies edited into a report;

Filming of testimonies/proceedings for development of a documentary;

Photographs of proceedings for use in power point presentation and report.

 

 

TESTIMONIES:

 

 

Each individual will briefly describe what life was/is like in an institution, how they managed to leave or why they want to leave and what it is like living in the community.

 

 

OUTCOMES:

 

 

Development of report of proceedings for use by advocates and policy makers at the federal/state levels;

Development of short documentary;

Power Point - Photographic Gallery.

 

 

For information: The ADAPT Community 512/442-0252 [EMAIL PROTECTED]

 

 

 

 

****************

 

 

Real People - Real Voices

Documenting the Institutional Bias in America

 

 

 

 

Dear Advocates:

 

 

ADAPT will be hosting a day long event documenting the institutional bias in America, "REAL PEOPLE-REAL VOICES". It will be held on Sunday, March 19, 2006 at the Hilton hotel in downtown Nashville, Tennessee.

 

 

ADAPT would like to invite up to 100 people with disabilities who have been institutionalized in nursing facilities or institutions for people with developmental and/or mental disabilities to testify before a panel consisting of representatives from the Department of Health and Human Services - Office on Disability; National Council on Disability; American Association of People with Disabilities (AAPD); National Disability Rights Network (NDRN) and the National Council on Independent Living (NCIL).

 

 

Stories should emphasize experiences in three areas:

1) What it was like living in an institution;

2) How you managed to get out of the institution; and

3) What it is like now, living in the community.

 

 

The "REAL PEOPLE-REAL VOICES" stories will be used to develop a report, a power point presentation and a short documentary that can be used by advocates at the state and national levels to bring about changes in the institutionally biased long term service and support delivery system.

 

 

If you are a person with a disability who has been in an institution, or you know of someone who would like to be one of the up to 100 people to testify at the "REAL PEOPLE-REAL VOICES" event, please fill out the attached form and send it back to us by February 15, 2006.

Though we currently do not have funds to assist those testifying, we can give you ideas on getting sponsorship for the event.

 

 

If you have any questions please contact us at The ADAPT Community "REAL PEOPLE - REAL VOICES.

512/442-0252 [EMAIL PROTECTED]

 

 

For an Institution Free America,

 

 

The ADAPT Community

 

 

REAL PEOPLE-REAL VOICES

Application

 

 

Name ______________________________

 

 

Address ____________________________

____________________________

____________________________

 

 

Phone (h) ____________ (w) _________

 

 

e-mail ____________________

 

 

Type of Institution? _______________

 

 

Location ___________

 

 

How Long Were You In? ___________

 

 

When Did You Get Out? ___________

 

 

Describe briefly what it was like in the institution, how you got out and how your life changed in the community:

 

 

____________________________________________________________________________

____________________________________________________________________________

____________________________________________________________________________

____________________________________________________________________________

______________________________________________________________

 

 

(use extra paper if necessary)

 

 

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Real People - Real Voices

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Austin, Texas 78704

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