|
You're surely not alone when it comes to pain John, being cold seems to be my morning coffee and burning freezing needles for breakfast.
It gets so bad sometimes I just hang my head and brace myself for it's unwelcome presence.
It's hell and nobody but you and the rest of can understand what it feels like, I try to explain it and people just look at me like how can you bare it, but shit how can you not? We have no choice!
It would be so much easier dealing with a sci if this pain would leave me, my life is good but the pain sure has it's toll on you.
Mark
-------Original Message-------
Date: 01/21/06 20:46:49
Subject: Re: [QUAD-L] Types of pain_Warmth
I use to think it was just me that felt that awful cold. It makes me hurt to my very soul. I use a small heater by my bed but once I'm cold, it takes hours to get warm. The worst part is, cold hurts! I love to feel warm sunlight but that's rare in Ohio. I take valium as needed, and hydrocodone for pain, but I cant say it is all that great since I have to O.D. to get the effect of pain relief when it is bad. I've tracked it and found that when the pain is worst is when my blood pressure is very high. I'm not sure what to do about it since my BP will drop to very low and nobody seems to understand it to any helpful degree. I'm fairly certain that both problems stem from the hypothalmus and pituitary glands not functioning. I also suffered brain damage so maybe it is just me. I'd sure like to know what y'all have found to work on pain. Sleep doesn't count. And I do smoke a little marijuana to help fall asleep.
john
| 
