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Hi Lori! I am the other "Lori" on the list.
I understand totally what you mean by the pain. It makes paralysis a piece of cake in comparison. It seems that there is nothing out there that really helps me. The person on this list who has some of the worst pain is Corie and I am sure that she will respond if she has not already.
She has done everything out there from nerve blocks To the Baclofen Pump to allow morphine directly into her cord. Whenever you are dealing with the central nervous system, and injury to it, it becomes a real complex problem. And with everyone being different that only makes it more complex.
I am just saying a quick hello for now because I have family in from out of town but I just wanted to welcome you to the list.
I have been on the list 11 years now and it is probably the best source anywhere for information on our specific quadriplegic problems.
Keep in touch,
Lori C4/5 Complete , 26 yrs post
Tucson, AZ
AGE - 41
-------Original Message-------
Date: 05/13/06 18:32:14
Subject: Re: [QUAD-L] Lori Ann - I'm New
Hello - Lori and Welcome to the List. We have another Lori here also. Yes, many of us have the exact same pains.. most of us find warmer weather and keeping busy can help distract it some. I tried Baclofen but did not like it....it was more for spasms and did not help with pain at all. Several of us found that Elavil can help some--at least help sleep at nights. I'm just now trying a newer drug called LYRICA but only on my 3rd day of it and it takes 2 weeks to a month to see how much it helps the pain. Some in here said it really helps them--other nice folks in here will offer suggestions too. Good Luck and hang in there, the 1st year and a half is a tough time for new quads.
Dan-c-6 going on 9 years post - car wreck also.
lori <[EMAIL PROTECTED]> wrote:
Hi,
My name is lori ann and I'm a C-6 complete, just over 13 months post. My
biggist problem is PAIN,PAIN,PAIN!
It is so severe it colors every aspect of my life and I know it has held me
back from recovering some independence in my life.
I was in a car accident on my way to the meth clinic, where I was trying to
beat an addiction to prescription pain meds, that was completely out of
control.
I was being treated for chronic pain.boy if I'd have only known
what was in store for me!!!! Now we can't find a pain med that comes close
to even touching the pain. It's so ironic too, 'cause the pain keeps getting
worse and worse. Everyday I'm astonished at the intensity. You just can't
prepare yourself against it. I'm very depressed, I wish I wouldn't wake up,
I'm ready to die..
Being a quad though, I'd have to have someone assisst me with suicide. I'm
almost ready to ask my fiancee' of 12 1/2 years if he would do it. I don't
think he would, though. Even if I begged.
I have all kinds, the hellfire burning, which for some reason is getting A
LOTworse., I Also have shoulder and hip and knee pain.but the biggest worse
pain I have is in my buttocks. It is SO severe that I can't stay in my
chair for more than 4 hours at a time. Even in bed I have to be rolled onto
my side, and then my shoulders and hips ache. And that's in an air
mattrress. I try to work through the pain, it just wears me down,
Here's what meds I take for pain:
3900 mgs neurontin split in 4 doses
120 mgs methadone a day
70mgs of baclofin a day (for spasms, which I never had, dr.tells me it
helps w/pain) does it?
1mg klonopin 3 x day
75 mgs trazodone at bedtime ( to help me sleep though the pain) hah!
Well, I've whined enough, just wanted to get it out, thanks for listening
and any suggestions greatly appreciated,
Hi, again everyone,
Lori ann
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