hi dylan, i read your email and the symptoms you're describing is very silimar to what i had a couple years back. abnormal spasming, severe headaches, laying down increases the spasms, headaches, only sitting up helps somewhat. it is probably your bowels. no way to say this than just say it. you need a good clean out. maybe several. if its not the bowels, then id say maybe a bladder prob. maybe a combo of both. but sinse u mention intense spasm increase when pressure put on your stomach, then id start with the bowel and go from there. try a good weeks worth of milk of magnesia and an every day dose of stool softeners. stay on ur softeners after so probs dont come back. a urine test and antibiotics wouldnt hurts either. anyways, u better get it solved before ur blood pressure goes through the roof and then ur in bigger trouble.
luck, Rick c3-4 quad (20 years post) --- Dylan <[EMAIL PROTECTED]> wrote: > Hi, I haven't written in in years but I still > receive and read the > quad-list. I have a warm spot in my heart for all of > you people. And I have > found reading it to be both encouraging and helpful, > at times wen I really > need information about this disability. I fell like > a veteran of this quad > thing now :-) I was injured 8/10/86, a month after > my sixteenth birthday. > So I've now been in this wheelchair thingy for 20 > years! wow. > > What keeps my going and positive are my daughter, > who is now going on 14 > years old and doing very well (and yes she was > conceived naturally by a > c5/6 complete quad, so it is possible), and my > friends both old and new. > Recently, well in the past year, I've gotten into > playing this online > computer game called World of Warcraft. I'm having > great fun with it. I get > to pretend I can walk, run, and jump again :) > > Anyway, one reason I'm writing in is because lately, > like in the last month > or two, I've started to have these super > uncomfortable type of > disreflexia/spasm. I assume that others of you must > have experienced it as > well. Its a different type than the normal > disreflexia or spasm that might > happen if, say, you are having a pressure spot or > are cold or whatever. It > seems to trigger in the morning after or during my > stretching routine or > just after I get in bed(they're usually weaker > then). And the only thing I > can do to stop them is to immediately sit up. If I > don't, they (the spasm > with its accompanying very painful disreflexia) will > come through my body > in a rhythmic pattern (like hiccups) but with each > one getting > stronger/worse until within a few minutes my heart > is pounding in my chest, > my whole body is clenched, and I get the worst > headache imaginable. I can > feel the blood pumping into my brain and it gets to > where it feels like my > brain could explode if I don't sit up. After I sit > up it calms down pretty > quickly, and if I've let the headache escalate by > taking awhile to sit up, > it takes about 45min for it to dissipate and go > away. It also seems to > trigger when the right side of my torso/stomach area > is touched. Other than > these occurrences my health is doing very well and > I'm in the final stage > of clearing up this really bad pressure sore that I > had. > I'm wondering if any of you quads know what I' > talking about or have > experienced this. If so, do you know what might > cause this? and is here a > way to address the cause of it? > Thank you. Yours, Dylan > > __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com
