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Tnx W for posting this for me when you do!
Hey y'all..... can we do a survey and how many of us have been diagnosed
with syringomyelia and when?
Right off I can remember the following people besides myself:
* Corie Jones
* Ron
* Danny Hearn
I apologize to those of you others I know and whom I have talked to many
times but am having a current brain freeze.
My symptoms began around 1990 but I was not diagnosed until September of
1994. A lengthy syrinx was found.
Some doctors think that it is there at the time of injury but does not raise
its ugly head with symptoms until years later. Other doctors feel that it
begins forming over time. In any case, why the cerebral spinal fluid forms
WITHIN the spinal cord is still a mystery to them.
To make it easier maybe an e-mail could be started and everyone just add
their names as the e-mail rotates itself back to the list. Whatever works
though!
Lori
C4/5 complete quad, 27 years post
Tucson, AZ
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