When I began noticing pain that simply would not stop and in areas that theory says I can't feel, the doctor told me that it was most likely the cause. We did several tests avery 3 months to see if I was loosing more function. The conclusion in 1984 was syringomyelia. There wasn't any real idea of treating it or even finding the exact place where the damage is. It has always been a pain management issue with occasional tests to see if I'm loosing any more function or feeling. I don't recal if an MRI was even available or if medicare would have thought it was important enough to do it. The doctors I've talked to seem to feel a syrinx is a given with a severe spinal injury since it is very common with people that have back injuries that don't impair function for months or years. I'd be willing to wager at least 8 of every 10 of us on the list with traumatic spinal injuries over 8 years have a syrinx. That is a modest guess.
john 31 years post ----- Original Message ---- From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> To: [email protected] Sent: Wednesday, August 22, 2007 5:19:26 PM Subject: [QUAD-L] Lori_Syringomyelia count Get a sneak peek of the all-new AOL.com. Tnx W for posting this for me when you do! Hey y'all..... can we do a survey and how many of us have been diagnosed with syringomyelia and when? Right off I can remember the following people besides myself: * Corie Jones * Ron * Danny Hearn I apologize to those of you others I know and whom I have talked to many times but am having a current brain freeze. My symptoms began around 1990 but I was not diagnosed until September of 1994. A lengthy syrinx was found. Some doctors think that it is there at the time of injury but does not raise its ugly head with symptoms until years later. Other doctors feel that it begins forming over time. In any case, why the cerebral spinal fluid forms WITHIN the spinal cord is still a mystery to them. To make it easier maybe an e-mail could be started and everyone just add their names as the e-mail rotates itself back to the list. Whatever works though! Lori C4/5 complete quad, 27 years post Tucson, AZ ____________________________________________________________________________________ Be a better Globetrotter. Get better travel answers from someone who knows. Yahoo! Answers - Check it out. http://answers.yahoo.com/dir/?link=list&sid=396545469
