diagnosed w/ syrinx on july 19 (my birthday present)
On 8/22/07, [EMAIL PROTECTED] <[EMAIL PROTECTED]> wrote: > > > > > > ------------------------------ > Get a sneak peek of the all-new > AOL.com<http://discover.aol.com/memed/aolcom30tour/?ncid=AOLAOF00020000000982> > . > > > ---------- Forwarded message ---------- > From: "Lori Michaelson" <[EMAIL PROTECTED]> > To: <[EMAIL PROTECTED]> > Date: Wed, 22 Aug 2007 13:30:25 -0700 > Subject: From Lori_Syringomyelia count > Tnx W for posting this for me when you do! > > Hey y'all..... can we do a survey and how many of us have been diagnosed > with syringomyelia *and when?* > > Right off I can remember the following people *besides myself:* > > * Corie Jones > * Ron > * Danny Hearn > > I apologize to those of you others I know and whom I have talked to many > times but am having a current brain freeze. > > My symptoms began around 1990 but I was not diagnosed until September of > 1994. A lengthy syrinx was found. > > Some doctors think that it is there at the time of injury but does not > raise its ugly head with symptoms until years later. Other doctors feel > that it begins forming over time. In any case, *why the* cerebral spinal > fluid forms WITHIN the spinal cord is still a mystery to them. > > To make it easier maybe an e-mail could be started and everyone just add > their names as the e-mail rotates itself back to the list. Whatever works > though! > > Lori > C4/5 complete quad, 27 years post > Tucson, AZ > > > > > > >
