I think there is a limit to how much people can stand being around me. You 
sound all sweet and fuzzy. I'm like a broken frankenstien toy with pieces 
falling off. I print up messages from phone calls and nobody figures them out. 
One aide said I was a 3-D puzzle with missing pieces. 

Just laugh and go beg some money downtown so I can give her something to live 
on.

john



----- Original Message ----
From: Stacy Harim <[EMAIL PROTECTED]>
To: John S. <[EMAIL PROTECTED]>; [email protected]
Sent: Wednesday, September 26, 2007 6:30:37 PM
Subject: Re: [QUAD-L] Unidentified subject!


That is a shame.  I was getting 6 a day.  I have lived alone as well.  I didn't 
use them all and now need them increased bc of the fusion limits me more.  I 
won't need them probably more than 6 months after I get rehab I will be able to 
do more and will lprobably be more independent with my transfers again once I 
relearn my balance.  It's really off bc of the amount of spinal fusions.  I 
also need to regain strenght after being in bed since May except the 3 weeks I 
had in rehab until my flap opened up.  It has taken me forever to wait for the 
hours and hopefully next week, I will be able to finally get up when I get the 
help.  I was given a really hard time bc my mom is my paid caregiver but lives 
25 miles away.  6 hours isn't enough time do help me get dressed, help 
w/errands, clean, etc. By the time I get washed up and dressed, it would be 
time for me to go back to bed before she goes and would have no time for 
anything else.
 
It's a shame how overworked these people are and how we have to wait for them 
to get the papers pushed.  I got really spoiled with my old coordinator.  She 
was working and going to nursing school while really on top of getting what I 
need.  I have to wait sometimes over a week for my new one to call me back.
 
Hoping to at least get outside next week.  I'm going crazy in this stuffy 
house.  Thank God for the antideppresants because I have only spoken to a 
couple of friends and have had one visit since the beg of aug.  My friends are 
busy with their amilies and its still busy in the restaurants here since the 
weather is holding out here at the beach.  I am hoping I can make the transfer 
into the van so I can get away for a little bit to at least see them where they 
bartend at. There is a lot more to hold on to and the transfer is short so I 
pray when I try, it works out for me.  I want to be able to drive myself to my 
rehab so I don't have to deal with medical transportation.  Especially to 
Baltimore 3 hours away.  Medical transportation picks me up before dark and 
gets me home well after since I am first picked up and last droppped off since 
I live the furthest east.  They take loads of people to Baltimore each day and 
its a nighmare.
 
Anyhow, It hurts my heart to know that a lot of you are worse off than me and 
cant get the help you need.  I know I can get better since I still have use 
ofmy arms and wonnt need so much permantly.  All I can say is that I'm lucky to 
live in a good state willing to give the help if you can find the resources bc 
they aren't exactly offered unless you get in touch with the right people.
 
Hope things get better for you,
Stacy


----- Original Message ----
From: John S. <[EMAIL PROTECTED]>
To: Stacy Harim <[EMAIL PROTECTED]>; [email protected]
Sent: Wednesday, September 26, 2007 5:19:13 PM
Subject: Re: [QUAD-L] Unidentified subject!


She has her provider number but believe it or not the company that oversees 
waiver in Ohio has a special office with one lady in charge of over 1300 
independants in this part of the state. They aren't all waiver. Some are just 
house cleaners for elderly people. I've met some others on waiver. Its an 
abused system. Theres a blind lady that drives. A wealthy politician who's 
autistic 3year old gets 60 hours of care a week so his wife can be vice 
president of the historical society. One guy is simply diabetic and gets 35 
hours a week. now I'm reading where it could take 6 weeks for her first pay 
check. Then again, I only qualify for 15 hours. I use to get 30 hours but they 
did an audit and told me was abusing the system. 
 
john


----- Original Message ----
From: Stacy Harim <[EMAIL PROTECTED]>
To: [email protected]
Sent: Wednesday, September 26, 2007 4:37:10 PM
Subject: [QUAD-L] Unidentified subject!


Wow, the waiver pays 13.01 and hour for independent providers in MD. The 
paperwork constantly changes.  Do you have some sort of coordinator to help you 
through it?
 
 
 
Stacy


----- Original Message ----
From: KK <[EMAIL PROTECTED]>
To: John S. <[EMAIL PROTECTED]>; [email protected]
Sent: Wednesday, September 26, 2007 3:45:14 PM
Subject: Re: [QUAD-L] ANYONE KNOW ABOUT INDEPENDANTS


In Texas an agency gets paid $40 an hour for each aid.  Most aids get paid 
minimum
wage.

Never hired my own so don't know anything about that part.


KK

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