I also went to that list because I had ADEM (Acute Disseminated
Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as
well. I too thought that The TM list would help me but find more help here.
There are some paralyzed on that list, but mostly people dealing different
types of problems because they can walk. I know it's hard for them but my
issues are more related to paralysis.
Stacy
----- Original Message ----
From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]>
To: [EMAIL PROTECTED]; quad-list@eskimo.com
Sent: Sunday, February 24, 2008 12:13:52 PM
Subject: Re: [QUAD-L] free list
Stacy,
I totally agree with you. There are more pressing issues that this website
could address that would be a great help to those of us who need it. I went
into the Transverse Myelitis website, but found that the quad website is where
I can get the most information for my needs. When I come to this site I expect
to find posts that would address my questions as a quad, instead of a bunch of
conversation about something that is of no use to any of us.
I am not saying that there should never be comments on current events or news
articles, but I would think that our comments would be something beneficial for
those of us who look toward this site for, what may be, the only help we can
find. Sometimes we get on a subject and just comment on it until the comments
are repetitions and of no use to anyone.
Please, I beg of you, be mindful of us who really need help dealing with being
a quadriplegic and answers to our issues at hand. Thanks in advance
Naomi
C4 quadriplegic since July 2005
due to Transverse Myelitis
Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.
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