Well said. Q
On 2/26/08, Stacy Harim <[EMAIL PROTECTED]> wrote: > > The point of my post was that topic was becoming mundane to use your > words. I totally agree that there are many more things to discuss aside > from paralysis, but sometimes topics get beat to death. After days and so > many posts saying the same things, sometimes it turns into an arguement and > some hateful things are said. I understand there is a delte key, however I > don't always check my email every day. When I get busy, it can be almost a > week or more and I don't have the time or patience at that point to go > through all of the emails so I delete all of them at once only to find I > missed an important post after the fact. Then if I want to know what it > said, I have to go to the archives. > > My whole point is that we are here to support eachother, not beat > eachother down. It's like people seem to think those who yell the loudest > is right sometimes. How about we express ourselves and response to what > someone else said is fine (to me), but I get frustrated to see the same > thing said over and over again and like I said before, hurtful things can be > said. Again, we are here to support eachother. > > I don't expect everyone to reply to my posts, but it gets aggrivating to > see posts like that get so much more attn than real life issues that we have > to deal with. People should have kind words to offer even if they can't > help over hurtful words about topics like the one about the poor woman who > passed away. > > Sorry for my rambling, but my opinion stands about how I feel about the > list. Someone told me that he has seen many leave over chat like that and I > know of at least one myself that contributed quite a lot to the list > sometime ago. > > Cant we all just get along? > Stacy > > > ----- Original Message ---- > From: Quadius <[EMAIL PROTECTED]> > To: Stacy Harim <[EMAIL PROTECTED]> > Cc: [EMAIL PROTECTED]; [email protected] > Sent: Tuesday, February 26, 2008 7:54:11 PM > Subject: Re: [QUAD-L] free list > > I hope you continue to find answers here. Unfortunately there are going > to be those threads which we don't like, but as someone said before, there > is always the delete key. > > Just because you don't get a number of responses to your queries, doesn't > mean it was a read by a multitude of people who really didn't feel the > ability to respond effectively to your question. I read every answer or > suggestion and it helped me out. > > About three or four years ago I made a similar plea and someone, it may > have even been Tim (stuntman) who responded that we think about things other > than a quadriplegia all the time. Why not comment about them on this site? > The person felt it was mundane to consistently do nothing but talk about > quadriplegia and frankly I have to agree. > > That is not to say that I don't agree with what you wrote. We should be > more consumed with those who won't come out and help those of us in need. > > I hope this made some sort of sense. If not I apologize. > Quadius > > > On 2/24/08, Stacy Harim <[EMAIL PROTECTED]> wrote: > > > > I also went to that list because I had ADEM (Acute Disseminated > > Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as > > well. I too thought that The TM list would help me but find more help here. > > There are some paralyzed on that list, but mostly people dealing different > > types of problems because they can walk. I know it's hard for them but > > my issues are more related to paralysis. > > > > > > Stacy > > > > > > ----- Original Message ---- > > From: "[EMAIL PROTECTED]" <[EMAIL PROTECTED]> > > To: [EMAIL PROTECTED]; [email protected] > > Sent: Sunday, February 24, 2008 12:13:52 PM > > Subject: Re: [QUAD-L] free list > > > > Stacy, > > > > I totally agree with you. There are more pressing issues that this > > website could address that would be a great help to those of us who need > > it. I went into the Transverse Myelitis website, but found that the quad > > website is where I can get the most information for my needs. When I come > > to this site I expect to find posts that would address my questions as a > > quad, instead of a bunch of conversation about something that is of no > > use to any of us. > > > > I am not saying that there should never be comments on current events or > > news articles, but I would think that our comments would be something > > beneficial for those of us who look toward this site for, what may be, > > the only help we can find. Sometimes we get on a subject and just comment > > on it until the comments are repetitions and of no use to anyone. > > > > Please, I beg of you, be mindful of us who really need help dealing with > > being a quadriplegic and answers to our issues at hand. Thanks in advance > > > > *Naomi* > > C4 quadriplegic since July 2005 > > due to Transverse Myelitis > > > > > > > > ------------------------------ > > Delicious ideas to please the pickiest eaters. 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