I recall being told I would never be able to breathe without the aid of a ventilator. During the first year I never lost hope, but after about three years I realized it was highly unlikely I would get any more improvement than I had already. I have seen some small improvement, but I still can't move anything below my shoulders. No finger movement, no nothing, but I'm not going to complain because there are many people out there on ventilators and others that are not who have that much worse than I do.
At least that's what I tell myself all the time. Quadius On 3/29/08, RollinOn <[EMAIL PROTECTED]> wrote: > > Man I remember those crazy thoughts, I guess we all had some point where > it felt hopeless. > I have no recollection of my first 4 weeks following my accident but I > remember nightmares I had and they were just vividly crazy. > The finger stuff is just plain frustrating but it comes with the package. > > I hope you find some answers, > > > Mark Jackson > > RollinOn > > > > > ------------------------------ > *From:* jetski [mailto:[EMAIL PROTECTED] > *Sent:* Saturday, March 29, 2008 1:28 PM > *To:* quad list > *Subject:* [QUAD-L] Response to Rollin On, Mark > > > Hi Mark. Well, to answer your question, my onset was about 1995. First > I lost the use of my left hand and then 6 months later my right hand and > then the paralisis began to spread to my left leg and then finally my right > leg. This is why the medical field thought I was suffering from ALS. > > I am now 66, again the onset was when I was about 55, the age that ALS > also effects people. > > In May of 02 the doctors gave me 24 hours to live, as the condition had > deteriorated to such a deplorable condition. I can recall lying in my > hospital bed looking out of a window, thinking I would never go outdoors > again. I was so paralyzed at that time if I wanted to roll over I had to > have my caregiver do it. > > But, in retrospect, I can only guess God had other plans for me. Exactly > what they are, I don't know yet, but I am waiting. > > I can understand the "No finger Movement", it is frustrating to have to > fight to pick up even a piece of paper or not being able to button or zipper > something, instead having to wait until someone comes and does it for you. > > Bill H. T-1 & T-2 quadriparesis, 6 yrs. > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.519 / Virus Database: 269.22.1/1348 - Release Date: 3/28/2008 > 10:58 AM > > No virus found in this outgoing message. > Checked by AVG. > Version: 7.5.519 / Virus Database: 269.22.1/1348 - Release Date: 3/28/2008 > 10:58 AM >
