Hi Mark. Well, to answer your question, my onset was about 1995. First I lost the use of my left hand and then 6 months later my right hand and then the paralisis began to spread to my left leg and then finally my right leg. This is why the medical field thought I was suffering from ALS.
I am now 66, again the onset was when I was about 55, the age that ALS also effects people. In May of 02 the doctors gave me 24 hours to live, as the condition had deteriorated to such a deplorable condition. I can recall lying in my hospital bed looking out of a window, thinking I would never go outdoors again. I was so paralyzed at that time if I wanted to roll over I had to have my caregiver do it. But, in retrospect, I can only guess God had other plans for me. Exactly what they are, I don't know yet, but I am waiting. I can understand the "No finger Movement", it is frustrating to have to fight to pick up even a piece of paper or not being able to button or zipper something, instead having to wait until someone comes and does it for you. Bill H. T-1 & T-2 quadriparesis, 6 yrs.
