Oh the people who might be bitter or angry are not unwise or lack knowledge! Having those feelings also don't necessarily translate into a lack of adjustment. When they choose to channel those feelings into something else is when great changes take place whether personally or on a societal level. I had worked in the field of rehab for many years prior to coming to this program, and as part of training in this program I have also worked with many with disabilities. I was paid very little but I don't think that the consumers I saw who had very little resources were not worth seeing. But again, I get your point and I've never thought that your knowledge is worth nothing. But just because I am unable to pay doesn't mean that my research is any less important than the ones out there that pay. As you may know, there is no way anyone can know how research studies are used to benefit anyone unless you know the results and they are published or discussed in media. Unfortunately the results of most psychosocial research, unlike medical research, are not published for the public to consume.
Best, Jenny On Tue, Aug 5, 2008 01:23 PM [EMAIL PROTECTED] wrote: > >Don't confuse, being wise and having knowledge, as bitterness, anger or >resentment against those trying to help us. As I mentioned earlier to you. >After you graduate and enter the professional job market you will value, the >paying customer vs those who want something for nothing. Most of those on this >list are well adjusted and have accepted themselves for who they are.... or I >hope they are. Combined, our knowledge is worth more than oil from Saudi >Land, yet you don't see them giving it away as it just might help someone. >lol. > >Best Wishes and don't work for cheap..... you earned it. >W > > >In a message dated 8/5/2008 12:16:58 P.M. Central Daylight Time, >[EMAIL PROTECTED] writes: > >Hi W, > >I too, do see you point. I have appreciated these exchanges with you and the >points raised by Lori. It is still disheartening to feel your bitterness, and >perhaps anger and resentment as well toward the people who are supposed to >help >you. I get the disappointment at establishments. Getting through this program >itself requires me to jump through many unnecessary hoops. There is a lot of >bs >going on everywhere though I don't think research is one of them. I think it >is >possible to pick and choose the research you want to participate. Some of >them >are certainly time-consuming while others only take a few minutes. Just so >you >know I don't get a grade for doing this study. I'm at the end of my program, >and without doing this I cannot graduate. Contrary to other students who may >have access to more financial resources, I need to rely on the kindness of >others who are willing to help. You can say that I still have something to >gain >from this and that would be true. However, my field is not a money-making >business when I do graduate. There are definitely those who choose to work >with >rich clients or consumers who can afford to pay, but there are also many who >choose to work with consumers on a sliding scale fee. I see a therapist >regularly who charges me a sliding scale fee and saw me for free during the >time when I couldn't afford to pay anything but food and rent. I don't think >the service she provides is any less than someone else who would have charged >me more than $50 a session. I guess my point is that please think about who >you >are helping to send out there in the field when you make your decisions about >which surveys or research to participate. I certainly hope that the people >who >do fill out my survey are being honest about their responses or the whole >point >of research is lost and benefits no one. > >No worries. I will remember everyone here and have always remembered those >with >whom I come in contact in my journey. I hope also that you will come across >helping professionals in your path who are more concerned with helping than >how >much money they are getting out of meeting you. Take care and best wishes, >Jenny > >On Tue, Aug 5, 2008 05:02 AM [EMAIL PROTECTED] wrote: >> >>Hi Jenny >> >>I see your point and hope that you will agree that some many of the members > >>here are >>drenched in surveys and researchers, trying to take up our valuable time, >>for their benefit, er, oops grade. >>You may not remember, but several of the members here have been thru the >>Master's and Doctorate >>programs. >>Just last week I called a doctor and wanted to take with them and was told > >>that I needed an appointment and it would costs $55 dollars. I advised the > >>office that my visit would take that long and perhaps save humanity as we >know > >>it... Again, I was told to make an appointment and $55 dollars. >> >>Nothing personal, but if you want tangible credibility, you pay for it. >If >>you are looking for a grade, take what you get.... and make the most of it. >> >>Good Luck in School >>And remember all of us in your journey >> >>Best Wishes >>W >> >>In a message dated 8/4/2008 11:22:54 P.M. Central Daylight Time, >>[EMAIL PROTECTED] writes: >> >>I appreciate your concerns. If I could pay everyone who participates, I >>would. >>This study is not funded by psu or anyone but myself. The research that you >>participated previously were most likely funded by people who can afford >to >>pay >>out of their own pockets or by large organizations. I hope that you don't >>think >>that I don't think your knowledge is worth being paid. I certainly don't >>think >>of this as a game to be played. There are definitely limitations to >research, >>and sometimes the benefits don't reveal themselves until much later when >>research has accumulated. One research study only finds out certain things >>and >>not everything, which is why you may experience the fact that some >questions >>are repeated or seem familiar. A study can be different from another one >>based >>on only one variable, and this could mean that these two studies have a >lot >>of >>questions in common. But only by making certain variables constant can >>researchers find out what factor is most important. Besides the lack of >>financial funding, the other reason for not paying every participant is >that >>it >>contributes a factor to the research that has nothing to do with the >research >>itself. It could potentially include only the participants who want to be >>paid >>and not others who participate for other reasons. But like I said, if I >could >>pay I would. >> >>Also, you may not think your participation will benefit a certain >population, >>by your knowledge adds to the existing knowledge base. I also believe that >>people's experiences are individual, which is actually what I'm trying to >>find >>out through my research. This knowledge could help shape the method >>counselors >>and therapists work with clients or consumers. I'm not going to be a future >>researcher, but a rehab counselor and I believe in the benefits of this >>project. I respect your opinions and your cynicism and you are free to not >>participate, but please do not dissuade others who may be interested in >>participating or believe that there are benefits to research. Thank you! >> >>Jenny >> >>On Mon, Aug 4, 2008 08:15 PM [EMAIL PROTECTED] wrote: >>> >>>Amen Lori! >>>Most Master and Doctor's candidates don't realize that most on the list >>have >>>been thru the very same programs those who question are just embarking >>>on.... If they wish to play with our knowledge, let them pay and pay >>dearly. >> >>>Nothing personal, but a person has to survive on their knowledge. >>> >>>Best Wishes >>>W >>> >>> >>>In a message dated 8/4/2008 7:11:30 P.M. Central Daylight Time, >>>[EMAIL PROTECTED] writes: >>> >>> >>>Over the last 28 years as a quad I have seen/been sent more surveys and >>>questionnaires both by individuals and by organizations. And for a >while, >>played >>>the game. Even with the most obtuse questions that would never benefit >>>anyone. >>> >>>In most cases, I feel like we are just another "target group" to use for > >>>someone to get kudos for this or grados for that. I have filled out >>surveys >>and >>>questionnaires from the most upstanding disability organizations but >they >>>are the same old blah, generic questions over and over and over and over >>again. >>> Ad nauseum. >>> >>>When all is said and done -- I have never seen it benefit the spinal cord > >>>injured population. >>> >>>Lori >>> >>> >>>On Mon, Aug 4, 2008 at 2:33 PM, <[EMAIL PROTECTED] >>>(mailto:[EMAIL PROTECTED]) > wrote: >>> >>> >>>With All Due Respect To You And Your Project....... >>>Is someone posting on PSU's board that there are a bunch of Quads that >>>are ripe for any Master's Study Program? >>> >>>Another national college study paid $20 dollars to each candidate >>>who completed the 10-15 minute online research study. >>> >>>We had another person that was looking for useable human organs >>>and decided to try this list because of all the Quads.......... >>> >>>A $25 dollar raffle is like a dangling carrot that might be over ripe to >>the >>>winner. >>> >>>I don't know.... maybe its just me. >>> >>>Good Luck Doctor Candidate! >>>W >>> >>> >>>In a message dated 8/4/2008 4:25:09 P.M. Central Daylight Time, >>>[EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) writes: >>> >>>Hi everyone, >>> >>>Greetings! I am a student in counseling and rehabilitation currently >>>conducting >>>research on chronic illnesses and disabilities and I need your help! >There >>is >>>very little current research on the psychosocial aspects of chronic >>illnesses >>>and disabilities. My survey has been approved by the Office for >Research >>>Protections and Institutional Review Board (IRB# 27939) at my >university- >>>Feel >>>free to contact them to find out if my research is legit (814)-865-1775 >or >>>e-mail [EMAIL PROTECTED] (mailto:[EMAIL PROTECTED]) My survey > >>is >>>completely voluntary and anonymous. >>>It does ask for an e-mail address at the end only if you choose to enter > >>>into a >>>raffle to win a $25 gift certificate from Amazon.com >>>To comply with the Office for Research Protections I need to give you >the >>>spiel >>>below. Within the letter below there is a web link directly you straight >>to >>>my >>>survey. Thank you so much in advance for your help and participation! >>> >>>Best wishes >>>Jenny >>> >>>Dear Prospective Participant, >>>You are cordially invited to participate in a research study examining >>>attitudes and feelings regarding yourself and disability-related >>experiences. >>>This research study is being conducted by me as part of my dissertation >at >> >>>The >>>Pennsylvania State University. Your participation in this research study >>will >>>help counseling professionals and researchers understand various >>experiences >>>of >>>people with disabilities. You may also benefit from learning more >about >>>yourself and your experiences in the process of responding to survey >>>questions >>>in this research study. Please consider participating if you: >>>1) are 18 years or older >>>AND >>>2) have acquired a condition that is considered to be a chronic >illness >> >>>or >>>disability. >>> >>>If you meet the two criteria listed above, you are eligible to >participate >>in >>>this research study. They survey you will be asked to complete contains >6 >>>questionnaires which will take approximately 20-25 minutes. Your >>>participation >>>is voluntary and you may discontinue it at any time. No identifying >>>information >>>is requested. The information collected and the results of this research > >>>study >>>will be used for research purposes only. >>> >>>For every survey that is completed, I will donate $1.00 to the >Make-A-Wish >>>Foundation. In addition, you may enter a raffle drawing to win a $25 >gift >>>certificate from Amazon.com. >>> >>>If you wish to participate in this research study, please click on the >>>following link: >>> >>>_http://www.psychdata.com/s.asp?SID4268_ >>>(http://www.psychdata.com/s.asp?SID4268) >>> >>>which will automatically take you to the website containing the survey. >At >> >>>the >>>end of the survey, you will be asked to enter your e-mail address if you >>>choose >>>to enter the raffle. Your e-mail address will not be linked to your >>responses >>>on the questionnaires. >>> >>>Thank you for considering to participate in this research study! >>>Sincerely, >>>Jenny C.Chang, M.S. >>>Doctoral Candidate >>>Department of Counselor Education, Counseling Psychology, and >>Rehabilitation >>>Services >>>The Pennsylvania State Univesity >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>> >>>**************Looking for a car that's sporty, fun and fits in your >budget? >>>Read reviews on AOL Autos. >>>(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000 >0 >>17 ) >> >> >> >> >> >> >> >> >> >>**************Looking for a car that's sporty, fun and fits in your budget? >>Read reviews on AOL Autos. >>(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000500000000 >17 ) > > > > > > > > > >**************Looking for a car that's sporty, fun and fits in your budget? >Read reviews on AOL Autos. >(http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 > )
