Hi Kandy,
 
I am truly sorry for the family in reading your posting and wish both you  
and your husband the very best.
As a care giver, you must also protect yourself, other wise you will end up  
in the hospital from exhaustion.  I believe that there are a couple of  
members on this list from your state of Minnesota and will chime in to help  
provide 
you with local information.  As soon as I receive this info, I will  advise.
 
Best Wishes
 
 
 
 
In a message dated 12/18/2008 4:02:56 P.M. Central Standard Time,  
[email protected] writes:

Hi, my name is Kandy.
 
My husband was in a car accident on 5/10 and has  been been in hospital ever 
since.  He has a C-4 complete injury.   His injury is quad with trach 
dependence.  His vocal cords are paralyzed  but can tolerate speaking valve for 
about 
an hour 3 times a day.   Currently he is not eligible for MA (got knocked off 
because insurance is  paying at 100% at this time, and our income is too 
high.)  I have  recently lost my job, need to continue Cobra coverage so we 
have 
health  insurance.  But still do not meet the guidelines for MA.  I am  
currently trying to get husband into nursing home to continue his  therapies.  
He has 
been turned down by 37 nursing homes mainly due to his  care needs.  Since he 
does not qualify for MA, he don't qualify for  CADI/CAC waiver services.  I am 
trying to bring him home, but need home  modifications and a nurse.
I am currently learing all his cares which  include trach cares, peg tub 
cares, meds, bowel management...
 
~ The only problem with that is that his cares at  this time are 24/7, and 
some point I need to be able to sleep.  I have  enlisted volunteers which have 
put in a door and built a ramp but our house is  old farm house with small 
rooms and doors that will not accomodate  him.
 
IF anyone has any state or federal resources they  can give me, it would be 
greatly appreciated.  We live in  Minnesota.  He cannot receive medicare until 
November of 2010.  

Any suggestions out there?  I just want to  get my husband home. 
 
Thanks,  Kandy


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