----- Original Message -----
From: Paul Pacera
To: Steve Oldaker
Sent: Thursday, July 30, 2009 6:58 PM
Subject: Re: [QUAD-L] 2 much bachoflen
I take 150mg of Bachlofen daily(30mg 5xdaily),also 4mg of Zanaflex 3x
daily.It has been 10yrs.I do not get tired.Paul
----- Original Message -----
From: Steve Oldaker
To: 'Quadius' ; 'Veranda Escobar'
Cc: [email protected]
Sent: Wednesday, July 29, 2009 8:18 PM
Subject: RE: [QUAD-L] 2 much bachoflen
I've taken 120mg daily (30mg 4x daily) orally for 21 years per SCI MDs
direction, though FDA advises 80mg daily as the maximum dosage. I've tried
cutting back slowly several times, but anything below even 100mg daily has my
legs spasming out of my shoes. 120mg works for me. 300mg daily sounds close to
lethal. I don't know how one functions at all at that dosage let alone being
sleepy.
I hope you can work things out, Veranda.
Steve - C4, 21 years
From: Quadius [mailto:[email protected]]
Sent: Wednesday, July 29, 2009 7:57 PM
To: Veranda Escobar
Cc: [email protected]
Subject: Re: [QUAD-L] 2 much bachoflen
I'm a little shocked at the 300. I take 80 mg of baclofen a day, but that
is orally. The individuals I know who have a baclofen pump tell me it requires
quite a bit less than when they were taking the medicine orally.
Everyone reacts differently, but I never experienced fatigue from baclofen,
then again I wasn't taking it in the quantities you are. The highest I ever
went to was 160 mg a day.
I still take quite a bit of medicine for spasms. Baclofen doesn't seem to
be that effective for me, so I end up taking 75 mg of dantrolene a day and 5 mg
diazepam (Valium) a day. I managed to reduce my intake of diazepam
considerably over a 2 1/2 year period, but I have reached a plateau where
reducing my medication would cause too many spasms.
Definitely getting to see your doctor ASAP.
Good luck,
Q
On Tue, Jul 28, 2009 at 3:26 PM, Veranda Escobar <[email protected]>
wrote:
Hello everyone,
I wrote a few weeks back was telling everyone how i was having bad back
pain,bad spasms, and drinching in sweat. The spams were so bad they were
jerking me from sleep. Well i upgraded my pump on the 15th. For two days after
that I was asleep. I could not pull myself from my sleep. I was really scared.
Finally on 3rd day there was no more spams, no more sweating, and I was a wake.
Since then my stomach was hurting. Well the pain went away last night after a
week. But I am soooooo sleepy. What do you guys think? I was getting 280 dosage
thru pump now i have 320. I'm so faustrated because if i go bk & lower pump i'm
scared toget spams & sweats back. But i can't continue to be so sleepy. I wk a
40 job and i just want to be put my head down. Should i downgrade too 300.? I'm
asking u guys cause we know more than the dr's lol
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