Thanks Paul.  Do you have your liver ultrasound every two years  too?
 
Best Wishes
 
 
In a message dated 7/30/2009 6:02:26 P.M. Central Daylight Time,  
[email protected] writes:

 

----- Original Message ----- 
From:  _Paul  Pacera_ (mailto:[email protected])  
To: _Steve Oldaker_ (mailto:[email protected])  
Sent: Thursday, July 30, 2009 6:58  PM
Subject: Re: [QUAD-L] 2 much  bachoflen


I take 150mg of Bachlofen daily(30mg  5xdaily),also 4mg of Zanaflex 3x 
daily.It has been 10yrs.I do not get  tired.Paul

----- Original Message ----- 
From:  _Steve Oldaker_ (mailto:[email protected])  
To: _'Quadius'_ (mailto:[email protected])  ; _'Veranda Escobar'_ 
(mailto:[email protected])  
Cc: [email protected]_ (mailto:[email protected])  
Sent: Wednesday, July 29, 2009 8:18  PM
Subject: RE: [QUAD-L] 2 much  bachoflen



I've  taken 120mg daily (30mg 4x daily) orally for 21 years per SCI MDs  
direction, though FDA advises 80mg daily as the maximum dosage. I've tried  
cutting back slowly several times, but anything below even 100mg daily has  my 
legs spasming out of my shoes. 120mg works for me. 300mg daily sounds  
close to lethal. I don't know how one functions at all at that dosage let  
alone 
being sleepy.  
I  hope you can work things out, Veranda. 
Steve  - C4, 21 years 
 
From: Quadius  [mailto:[email protected]] 
Sent: Wednesday, July 29, 2009 7:57  PM
To: Veranda Escobar
Cc:  [email protected]
Subject: Re: [QUAD-L] 2 much  bachoflen
I'm a little shocked at the  300.  I take 80 mg of baclofen a day, but that 
is orally.  The  individuals I know who have a baclofen pump tell me it 
requires quite a  bit less than when they were taking the medicine orally.

Everyone  reacts differently, but I never experienced fatigue from 
baclofen, then  again I wasn't taking it in the quantities you are.  The 
highest I  
ever went to was 160 mg a day.

I still take quite a bit of medicine  for spasms.  Baclofen doesn't seem to 
be that effective for me, so I  end up taking 75 mg of dantrolene a day and 
5 mg diazepam (Valium) a  day.  I managed to reduce my intake of diazepam 
considerably over a 2  1/2 year period, but I have reached a plateau where 
reducing my medication  would cause too many spasms.

Definitely getting to see your doctor  ASAP.
Good luck,
Q 
 
On Tue, Jul 28, 2009 at 3:26 PM, Veranda Escobar <[email protected]_ 
(mailto:[email protected]) >  wrote: 
 
 
 
Hello  everyone,
 

 
I  wrote a few weeks back was telling everyone how i was having bad back  
pain,bad spasms, and drinching in sweat. The spams  were so bad they  were 
jerking me from sleep. Well i upgraded my pump on the 15th. For two  days 
after that I was asleep. I could not pull myself from my sleep. I was  really 
scared. Finally on 3rd day there was no more spams, no more  sweating, and I 
was a wake. Since then my stomach was hurting. Well the  pain went away last 
night after a week. But I am soooooo sleepy. What do  you guys think? I was 
getting 280 dosage thru pump now i have 320. I'm so  faustrated because if i 
go bk & lower pump i'm scared toget spams  & sweats back. But i can't 
continue to be so sleepy. I wk a 40 job and  i just want to be put my head 
down. 
Should i downgrade too 300.? I'm  asking u guys cause we know more than the 
dr's  lol




 
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