No I don't.Every three years.
  ----- Original Message ----- 
  From: [email protected] 
  To: [email protected] ; [email protected] 
  Sent: Thursday, July 30, 2009 7:05 PM
  Subject: Re: [QUAD-L] 2 much bachoflen


  Thanks Paul.  Do you have your liver ultrasound every two years too?

  Best Wishes

  In a message dated 7/30/2009 6:02:26 P.M. Central Daylight Time, 
[email protected] writes:

      ----- Original Message ----- 
      From: Paul Pacera 
      To: Steve Oldaker 
      Sent: Thursday, July 30, 2009 6:58 PM
      Subject: Re: [QUAD-L] 2 much bachoflen


      I take 150mg of Bachlofen daily(30mg 5xdaily),also 4mg of Zanaflex 3x 
daily.It has been 10yrs.I do not get tired.Paul
        ----- Original Message ----- 
        From: Steve Oldaker 
        To: 'Quadius' ; 'Veranda Escobar' 
        Cc: [email protected] 
        Sent: Wednesday, July 29, 2009 8:18 PM
        Subject: RE: [QUAD-L] 2 much bachoflen


        I've taken 120mg daily (30mg 4x daily) orally for 21 years per SCI MDs 
direction, though FDA advises 80mg daily as the maximum dosage. I've tried 
cutting back slowly several times, but anything below even 100mg daily has my 
legs spasming out of my shoes. 120mg works for me. 300mg daily sounds close to 
lethal. I don't know how one functions at all at that dosage let alone being 
sleepy. 

         

        I hope you can work things out, Veranda.

         

        Steve - C4, 21 years

         

        From: Quadius [mailto:[email protected]] 
        Sent: Wednesday, July 29, 2009 7:57 PM
        To: Veranda Escobar
        Cc: [email protected]
        Subject: Re: [QUAD-L] 2 much bachoflen

         

        I'm a little shocked at the 300.  I take 80 mg of baclofen a day, but 
that is orally.  The individuals I know who have a baclofen pump tell me it 
requires quite a bit less than when they were taking the medicine orally.

        Everyone reacts differently, but I never experienced fatigue from 
baclofen, then again I wasn't taking it in the quantities you are.  The highest 
I ever went to was 160 mg a day.

        I still take quite a bit of medicine for spasms.  Baclofen doesn't seem 
to be that effective for me, so I end up taking 75 mg of dantrolene a day and 5 
mg diazepam (Valium) a day.  I managed to reduce my intake of diazepam 
considerably over a 2 1/2 year period, but I have reached a plateau where 
reducing my medication would cause too many spasms.

        Definitely getting to see your doctor ASAP.
        Good luck,
        Q

        On Tue, Jul 28, 2009 at 3:26 PM, Veranda Escobar <[email protected]> 
wrote:

        Hello everyone,

         

        I wrote a few weeks back was telling everyone how i was having bad back 
pain,bad spasms, and drinching in sweat. The spams  were so bad they were 
jerking me from sleep. Well i upgraded my pump on the 15th. For two days after 
that I was asleep. I could not pull myself from my sleep. I was really scared. 
Finally on 3rd day there was no more spams, no more sweating, and I was a wake. 
Since then my stomach was hurting. Well the pain went away last night after a 
week. But I am soooooo sleepy. What do you guys think? I was getting 280 dosage 
thru pump now i have 320. I'm so faustrated because if i go bk & lower pump i'm 
scared toget spams & sweats back. But i can't continue to be so sleepy. I wk a 
40 job and i just want to be put my head down. Should i downgrade too 300.? I'm 
asking u guys cause we know more than the dr's lol

         

         



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