Ron, of course, is correct on the kind of Syringo us quads can acquire. "Post Traumatic Syringomyelia"
However, there are plenty of able bodied people will have *another* "form of" syringomyelia that is called *Chiari Malformation*. Unlike the form that we get that is "acquired" after a traumatic injury - Chiari Malformation is congenital (from birth) but symptoms often did not appear until people are in their 30s or 40s or 50s. They are very similar but very different. Just do a Google search on *Chiari Malformation* to find out more about it. To herlp more -- back in 1994 when I acquired Posttraumatic Syringomyelia - I had never heard of it so I was scared and I *had to do a bunch of research on my own.* I found the biggest, most helpful warehouse of information for those with both forms and it is found here http://www.asap.org . From there they have a bunch of forums, etc for people to join in and find out about their diagnosis, what they can do about it, talk to other people, etc. etc. etc. http://www.asap.org/forum/ Lori Michaelson Age - 45 C4/5 complete quad, 30 years post Tucson, AZ On Sat, Nov 21, 2009 at 10:16 PM, RONALD L PRACHT <[email protected]>wrote: > Quads get a condition call post traumatic syringomeyelia. This is a big > name for a fluid filled cyst that forms within the spinal cord at the > initial injury site. > > ron c7 > > --- On *Sat, 11/21/09, Greg <[email protected]>* wrote: > > > From: Greg <[email protected]> > Subject: [QUAD-L] > > To: [email protected] > Date: Saturday, November 21, 2009, 8:07 PM > > > Interesting thing, my sister has just been diagnosed as having a > Hydrosyringomyelia cyst. They do not know the cause yet. They said it can be > from one of three things, injury, brain malformation, or spinal meningitis > (she never had it, but I did as a kid.) She has had shoulder pain for years, > and down her arm. No meds help at all, plus she throws up after trying > anything strong. 3 times in the last 6 weeks it was so bad she has gone to > the E.R. Last night the pain was so bad she was throwing up and went in > again. All they do is give her a pain shot and say see your doctor tomorrow. > She has an appointment to see a neuro surgeon, but they can’t get her in for > a month. > > > > I have a Syrinx, but have not had bad symptoms before. Has anyone had the > Hydrosyringomyelia kind? They look to be related, but syrinx just means > fluid filed cavity. I’m not sure the kind us quads get, does anyone know the > full name of the kind we get? > > > > > > Thanks, Greg > > -- Lori Age - 45 C4/5 complete quad, nearly 30 years post Tucson, AZ
