The part that scares me the most is blowing a condom and having the runs at 
about midnight. There just isn't anyone coming in until 9 am unless it's life 
threatening. intensely annoying is not the same as life threatening. 

BW,
john 




________________________________
From: bob quinn <[email protected]>
To: [email protected]
Sent: Mon, December 14, 2009 10:09:25 PM
Subject: Re: [QUAD-L]

Listen to Dan!  As he points-out and others will also, there are many 
alternatives to moving into a nursing-home.

I'm a c5/c6 quad with decent mobility in both arms and i live alone in my 
house.  I have help each morning for 3 hours, and no help the rest of the day.  
I keep my cell phone charged and with me always for back-up, but have made only 
two calls for help in the 4 years i've been here (one fall, one 
stuck-in-the-mud).  I use a "Handi Move" power lift on a track in my bedroom to 
get into bed at night by myself (fully clothed).  I can also use it to get out 
of bed and into my chair at night if I need to.

At 06:49 PM 12/14/2009, Dan wrote:

Good God man! A nursing home has to be your absolute last option. Nursing homes 
are breeding grounds for pressure sores and antibiotic resistant bacteria. They 
are understaffed and their help is underpaid which leads to the worst possible 
care. I am a high-level quad -- I can only use part of my left arm and that is 
very weak. I live alone in the old family homestead. I have helped during the 
day but at night I am totally alone. I have two lifeline buttons -- in case one 
doesn't work -- but otherwise I am alone. I know there is at least one other 
high-level quad on this list that also lives alone. Yes, it can be very scary 
but I prefer to be alternatives.
>
>Some of your alternatives -- besides the nursing home -- are, if you have the 
>room, getting a live-in aide. You could provide him or her with free room and 
>board providing they assist you during the night if need be. Of course, you 
>could end up with an angel or a devil.
>
>Also, I had a quad friend level 5/6 who lived in an apartment complex. It was 
>built for the elderly and disabled. He was the only disabled one in the 
>complex but he made friends with many of the other residents. At night he was 
>alone so he kept his door open and was able to call for help during the night 
>if he had to.
>
>The other option we have in this area is a housing complex strictly for the 
>disabled. It has 24 apartments. Everyone has their own PCA's and they also 
>have a shared PCA for the nighttime. Not a really bad option but it is very 
>clicky.
>
>So those are my options. Keep us informed on your choices and/or decisions.
>
>Dan
>
>
>
>At 05:16 PM 12/14/2009, Merrill said something that elicited my response:
> 
>
>Presently living in San Diego, California.  My spinal injury is C5.   Single 
>living is not an option with my level of disability.  As many other disabled 
>quadriplegics, my income is a base level even before paying for health care.  
>So, how are others here maintaining a quality of life.  
>> 
>>Nursing home living has been avoided for the near 20 years of my disability, 
>>but perhaps an acceptable facility would be an option.  I have considered a 
>>living situation with a caregiver, other disabled person, or other person 
>>right for my needs.


      

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